Scott's Update

No date yet for the EUS surgery...hoping to hear tomorrow. Scott is hanging in there, still planning on the trip to Green Bay this weekend, sounds like the weather may turn cold on him though, in the 60's today in River Falls.

I'll post the date when we know it.

Roxane

Scott got a call today from the clinic - CT scan will be @4:30 on 11/28 and EUS surgery @ 1:30 p.m. on the 29th - perhaps an overnight at Fairview, we will see.

The surgery is a lot later than we thought, but we can only figure that someone(s) out there need the earlier appts more. If Scott does have a problem we know help is only a call away.

Have a good weekend...look for Scott & Steve (section 124 - row 34 - seats 23/24) at Lambeau Sunday!! GO PACK :-)

Roxane

Scott had a nice time at the Packer game with Steve on Sunday, weather cooperated. The Packers beat themselves Scott said. Ouch this season hurts a little too much!!

Dr. Greeno called Scott today to see how he was doing, much as he expected I think. He told Scott to keep it up and hang in there. Waiting longer for the surgery will firm up the walls of the cyst and make for a better surgery outcome.

Thanks for the calls, visits and e-mail Scott has been getting lately, he loves hearing from everyone.

Roxane

Scott has not been feeling the best the past several days, so today we visited the clinic and saw Tanya, NP. She had spoken with Dr. Greeno (he is out of town at the conference) earlier and they discussed what to do regarding Scott. After his exam Scott was given 3 liters of fluids by IV and a CT was also ordered at 6pm today. We hope to get CT results tomorrow and further action plan.

The weather did cooperated and the drive home was not bad, just wet, it is still trying to snow now. When we know more I will blog again.

Roxane

Tanya Watson, NP called today with the results of Scott's CT. It seems the walls of the cyst have not matured as we had hoped they would, so they cannot do the EUS surgery earlier, in fact they have cancelled the November date, and Scott will be re-scanned in Mid-December. Yes, we are dissapointed with this news.

It has been decided that Scott will have to have a "NJ" tube inserted in his nose, a nutritional supplement is then fed through this. The feeding tube should help to make Scott stronger and greatly lessen the effects of trying to eat and swallow food. We have an appointment at the U-Fairview on Monday @ 9am to get the tube inserted. As far as we know Scott will have a visiting RN helping us with the care and use of the feeding tube, we will know more when that care gets set up.

Not the best news day around here, but we know that we are getting the best care. Scott needs to be stronger, we will get there it's just a bump in the road.

Roxane

Today the "nj" tube was inserted and reinserted after it came out on the way home from the U. Our visiting RN was here this afternoon to show us how the machine will work to pump the fluids for Scott, but once again the tube was dislodged due to Scott's coughing.

The new plan is that Scott will be admitted to Fairview tomorrow and he will be fed by IV (TPN) through the port in his chest. He will stay @ Fairview 24-48 hrs. to have the hospital staff make sure that things are working properly. A visiting RN will help us with the continued feeding from home.

Scott has had a rough day today for sure...cheer on the Pack tonight, that should make things a little better :-)

Roxane

Things got off to a slow start today at Fairview, they are busy!! Scott had to wait for a room about 45 minutes. Orders were not received until almost 3 p.m this afternoon, he was pretty uncomfortable. But now things a moving along, I left about 6:30p.m. to head for home and by the time I got home his TPN and additional nutritional supplements are now "flowing" by IV. I will head up tomorrow a.m. to see how things are progressing, he will call again tonight before he goes to sleep.

Roxane

Scott is much improved from yesterday. The nutritionists are still working on his feeding plan and hope to have it all in place by Friday or Saturday. They want to get Scott's feedings to a 12-14 hour cycle before he is sent home.

We plan to spend a low-key Thanksgiving together at the U, the food is actually good in the cafeteria...I won't miss out on the turkey dinner :-) Claire is taking Scruffy to EC so I can spend time @ the U, they are having dinner with Kyle's family, Ben & Jen are visiting with us after their meal with the Ferber's.

Though this has been a rough year for us, we are very thankful for Scott's continued progress back to health, for the friends and family we have rooting us on, for the medical team that is caring for Scott.

Happy Thanksgiving Everyone!!

Roxane & Scott

Scott seems to be doing well with the TPN so far. He is having more pain from the cyst now, so he is getting pain meds to help with controlling it.

We have a meeting tomorrow @ 10 a.m. regarding at home care. It still looks like Saturday will be the day he is sent home.

Hope your turkey was good!!

More as I know it.

Roxane

Scott was released from the hospital today. We got home about 5 p.m. He is tired and his stomach still upset, but the feeding part has been working to make him feel a little stronger. When we got home and he saw the snow in the driveway (3-4 inches of fluff) he said, I'll shovel and be right in...you can guess my response to that :-)

A home RN visited with us at about 7 and got his feeding all set up. It is a little frightening to do this ourselves, but we just need to get comfortable with the needle part and the pump usage, he will be fed at night while he sleeps, the feeding should be done at about 10:30 tomorrow, let's home all goes well tonight.

Planning a lazy day tomorrow.

Roxane

Things are going along ok, Scott is watching the Packers right now. He stays in bed most of the day, his stomach feels better if he lays down on his side.

Scott and I are working together as a nursing team. We are getting the hang of things and are not as nervous about the setting up of the feedings as we were, day # 3 coming up for us. We plan to call into the clinic tomorrow to see what the next step in the plan will be.

Scruffy and Claire just got home from their trip to Eau Claire, they have been gone since Thanksgiving day, they both had a great time :)

Roxane

Today between Scott & I we spoke with all our caregivers, and now know what we can expect.

We do have an appointment with Dr. Greeno on the 19th of December, Scott will have a CT Scan on that day also. We are not expecting to have the EUS surgery until at least January sometime. Scott can expect to feel stronger each day with the TNP, he is not really feeling well yet, but he certainly has improved from last Monday.

Claire is going to learn what we do with the TPN. It will be nice to have the additional helper when Scott needs assistance.

Things are going ok, we hope the TPN treatment continues to run smoothly.

Roxane