Saturday, January 8, 2005
How this all began
12/21/04 - @ HCMC to do a EUS. Dr. Mallory confirmed the mass - @ 4X2.5 cm - did a biopsy the area is inflamed and said he could not make a call re: status of mass. Set up appointment on Jan 3rd, 2005 to visit with Dr. Timothy Sielaff (@Abbott-Northwestern), he would give us the result of biopsy, and coarse the treatment, Dr. Mallory saying Sielaff is the best surgeon re: the pancreas in Minneapolis.
Saturday, January 8, 2005
appointment. @ Abbott-Northwestern results
The appointment went as we (sort of) expected...you always hope for the..."This has all been a mistake"...but no - Scott has pancreatic cancer he is scheduled for surgery on the 13th...this is good news though...some people don't even get a chance at surgery. He had a CT Scan today, we will hear results tomorrow - they are just checking it against the one he had on the 10th of December. So we are very thankful for the Doctor, he seems excellent...and very cautious. The details with the Scott's pancreas so far are this.
There is a tumor in the mid section closer to the tail end...the Dr. will remove the tumor and that 1/2 of the pancreas...remove the spleen for sure, than remove other organs as he sees fit basically - after surgery and some healing, Scott would have chemo or radiation or both....Scott does have a couple spots on his liver though that they are checking out...Hudson Clinic said they were benign. Dr. Sielaff ordered another CT Scan to take another look...we should get results today...if it seems as though the cancer has spread...there will be no surgery and chemo would begin with the surgery perhaps after chemo...so we want the surgery.
Saturday, January 8, 2005
Result of 2nd CT Scan
Going to relax for the weekend...the kids are coming over and hanging out with us...Toby too.
BIG game tomorrow....GO PACKERS!!!
Scott feels well and upbeat...he's skinny though, he has lost appox. 20 lbs.
More after the MRI results...guessing Tuesday the 11th.
Sunday, January 9, 2005
Sunday - 1/09/04
Steve P. came over to watch with Scott, they were both pretty calm though.
Linda, Kelsey, Claire and Melinda stopped by too.
Expect a quiet night tonight, going to Abbott tomorrow for the MRI.
Several phone calls, thanks again for all your support.
Roxane
Cool Idea!! internet update
I wish you lots of luck today, the MRI isn't that bad just take the drugs that are offered!!
Thinking about you
Love you both!!
Julie
I'll be crossing my fingers for you and your family today! Keep up the positive attitude and remember that you have lots of love and support to get through this!
Love,
Michele
I am just praying for both of you. Scott the surgery will be no picnic for sure, but you are young and strong.
Love you both. Toots
Our thoughts will be with you today and we are praying for the surgery on Thursday to be a sucess.
All our love,
Tara, Jason, and Owen
Thinking of you today with the MRI. It will alot easier with the pills.
We are wishing you the best of luck on the surgery on thursday. By the weekend you'll be able to enjoy the Vikings getting pounded!
See you soon.
Donna and Earl
We love you,
Amber, Ryan, and Abigial
Monday, January 10, 2005
1/10/2004 - MRI Today
Will let you know when we know.
After we get our call from the Doctor we expect to tell Scott's Mom (Rose) about the upcoming surgery. As you may or may not know she has been diagnosed with alzheimers, she has been depressed and at times very confused, so we wanted to delay the news regarding Scott's health for as long as possible, this should be another tough call for Scott, thanks to Steve and Judy for relaying the initial news, Scott will follow up with a call to his Mom.
Thanks for all the nice replys re: this site.
Roxane
Monday, January 10, 2005
Hello from Scott
Thanks
Scott
Thanks for the web site where we can keep track of how things are going. I have forwarded your e-mail to the rest of our kids as we are all very concerned. If there is anything we can do to help besides our prayers, please ask. We feel like family and really appreciate your updates. I have marked your website, and will visit it often.
Sonja & Allen
I won't be able to visit with you until Sunday as I will be in Dallas on business.
So you be a good boy. Don't give Roxie any crap and leave the nurses alone. I know I would............not.
All of my love, hope, prayers, and best wishes will be with you & Roxie. Good luck, and stay positive.
P.S. When I get there Sunday do you want flowers or Burger King?? ;-)
Bob
Good luck to you tomorrow - we will be thinking of you all. You're an official member of our nightly prayer group...thanks for keeping us all updated.
Love,
Doug, Charlene, Will & Ian
My thoughts and prayers are with all of you--each day!
Love this website with up to date news and comments!
Keep warm--cuddle as much as possible!
Enjoy all of your days off of work--together!! Just think, when this is all over--you both will have to get back to the old grind of work--so think of it as an extended vacation at home!!
So sorry the Packers didn't win:(
Love to all of you,
Bernie Weider
p.s. Thanks for the updates, hope this has healing effects on you as well as keeping friends and family informed!
Tuesday, January 11, 2005
It's a go!!!
The plan...we arrive @ Abbott-Northwestern @ 5:30 a.m. - surgery @ 7:30 - could take around 4 hours or so.
Ben, Jen, Claire and Kyle will be with me, I will get news out as soon as we know some.
Thanks for all the thoughts and prayers you are sending our way.
Roxane
Isn't technology great. Thanks for putting together this site and keeping us up to date. Good luck with the surgery on the 13th. The Wyoming contingent is definitely praying for you. Anne, Mike & Girls
Your FNB Friends will be thinking and praying for you all--
Keep us posted--
Hugs to you!
Bernie:>)
Claire
p.s. Hey Rada, I think I would go with Burger King!
Donna and Earl
Wednesday, January 12, 2005
Wednesday update/plans
All is well though, Scott and I thank you all for the e-mails, comments, prayers, well wishes and phone calls.
I will be staying at the hospital Thursday night with Scott, and Friday & Saturday night Claire & I will be @ Ben & Jen's. I will return home Sunday night.
Expect a posting later on Thursday evening, unless we find internet access @ Abbott.
Here we go...........
Rox
LOVE this website idea...that crafty Ben. LOVE the techno guys in the family!! Glad the waiting and planning is done, TIME TO GET YOU WELL!! We will be thinking and praying for you, and anxious to get the good report after your surgery. Scott, I'll call on Sunday to let you know how the purple guys did (or didn't!!) do :)
All our best,
Love - Jill, John, Sean and Jack
Melissa, Greg, Jake and Josh Godden
Love You
Krause Gang
See you friday.
Donna and Earl
Wish you all the luck in the world for Thursday morning!
We love you!!!
Now remember you need to do everything the Doctor and nurse tell you and of couse Roxane!!!
You will heal faster that way.
With all our LOVE
Wade, Julie, Joshua & Nikki, Cooper and Richard
Coach and Bordy ( I know how much Scott loves my dogs)
Wednesday, January 12, 2005
Heading to Minneapolis
Scott wants everyone to well aware of the weather conditions, and if it isn't safe, he would rather know that you are safe and warm inside at home...because he said he will be :-)
More as we know it.
Roxane
I hope that all goes well tommorow and in the coming days. You will all be in my thoughts and prayers!
Love~Emily
Lisa and I are thinking about you and keeping you in our prayers. Good luck tomorrow! Scott, you have to get well soon so you can come visit us in Boston! You'll love the accents.
Love,
Seth & Lisa
Just received the news from Julie last night. We are praying for all of you.
Scott, some people will do anything to get out of work!
You are a wonderful, loving, tough guy. I am sure those traits will help you through this situation.
Our love to all of you.
Don and Mary Dachel
Thursday, January 13, 2005
On our way....
Again, thanks for all of the support!
-Ben and Jen
Your friends and colleagues at West want you to know you're in our thoughts and prayers. Take care.
Julie Martagon
I hope and pray all goes well today. Scott, I'm going to try and make it up with dad sunday. Hang tuff!!!!
Nathan Rada
Just wanted you to know that you are in the thoughts and prayers of all of Ben's friends and colleagues at Best Buy. We're thinking of you. Take care.
-- Ben's group @ Best Buy
Love you guys. Look up.
Jordan and Sara
Thursday, January 13, 2005
Surgery News
We are at home now; we were released from the hospital about 11:30 a.m.
Yes, we are somewhat disappointed but feel we are getting the best advice from Dr. Sielaff. Scott's recommended oncologist is from the U of MN - Dr. Greeno, the appointment is to be set up as soon as possible. I will update with more info re: this treatment plan when I know more information.
Sounds like it will be cold weather a few days around here...so I will sit Scott in the recliner and keep him nice and warm by the fire.
Rox
It sounds like your Doctor is one smart guy.. If anyone would know it would be him.
BOTH of you need to get some rest and stay warm together, we are all praying and hoping for the best!
If you need anything let me know and I will be there in a minute or faster!!
With all my love, Julie
Love You
RK
Just wanted you to know that your friends at West are thinking of you. Stay warm and take care!
Leah and Becky
Donna and Earl
Like anyone else said---rest, keep warm and keep your spirits up. We all love you. Toots
I want to THANK everyone from near and far for all of your comments. You really don't know how much it helps to know that you are all thinking of our family. We are all trying to stay positive, and it is much easier with all of you helping.
I will be co-nursing with my mom as much as I can, so if my parents are hard to get a hold of my number is 651.270.1431, and I would be glad to give updates!
Keep talking! We love it!
Love, Claire
p.s. Hi Dad, be over in a while. :)
Thursday, January 13, 2005
I am now an official BLOGGER!
THANKS EVERYBODY! We love you all!
Just wanted to let you know that we are thinking of you and appreciate all of the updates.
Keep positive, stay strong, and we'll keep praying!!
Your Xerox Family (Anita, Julie, Lori, & Mark)
Stay warm, think good thoughts and know that LOTS of people are rooting and praying for you.
Mary & Larry L
Thursday, January 13, 2005
Covered from the rear
Family and friends what else can a guy ask for, you never realize who's on your side until you turn around and check your back. I feel well protected from the rear and I am able to look straightforward into my future. My doctor's nurse Marie set me straight; this is not a set back, but a different and positive direction, more time involved, with the same ending, the demise of this cancer. Thanks for all the good thoughts from each and every one of you, it is great to have venue like this (Thanks Ben). Keep them coming, and I'll keep coming back at you with more updates.
Scott
Love you guys!
Don and Mary D.
Friday, January 14, 2005
Friday the 14th - all is well
Scott is having a good day with very little pain from the 3 pokes they put in his belly.
Will update when we have new info. Everyone have a good weekend, and stay warm if you are anywhere in the our area....brrrrrrrrrrrrrrrr.
Roxane
Friday, January 14, 2005
New appointment set
The appointment will be on Thursday, January 20th @ 10:00 a.m. - He will be seen @ Masonic Cancer Center, they are affilated with Fairview University Medical Center. I included links to our doctors, I thought you might want to see their faces, since I will refer to them often in my updates.
So we are looking forward to our next appointment and expect to relax and enjoy ourselves this weekend, INSIDE :-)
Rox
More information about Scott's doctors:
Dr. Sielaff
Dr. Greeno
Have a relaxing weekend!!
We'll have a drink for you at the local hang out!!
I hope nobody ask me for my ID--BURRRR
I'll stop by on Sunday or Monday-Don't worry I'll call first:>)
Love Ya
Bernie
Donna and Earl
Sonja & Allen
It got to 16 below zero last night here in Wyoming and it will probably get colder tonight. I just hate January. Winter is the pits!!! Toots
Just heard about your problem. My thoughts and prayers are with you and your family. Knowing you, it's just a minor bend on the road through life. Put the pedal to the metal and slide around that curve. You'll be on the strait-a-way in no time.
Jim McCarthy ... :)
Just heard from Linda. Like many people in these parts, we tend to hibernate during the winter months. Hadn't seen you coming and going recently. Now we know why. We want you both to know, our thoughts and prayers are with you. Don is home during the day if something comes up and you need help. Your neighbors, Jane & Don
Saturday, January 15, 2005
Saturday, Jan 15th
I'm sure we will be watching football all weekend and staying by the fire, he has a puzzle going...he and Jen worked on and off on it all day yesterday, it's a tough one...so he could use some help :-)
Hope you are all having a great weekend.
Roxane
Donna and Earl
Just heard the news today from the class of 69 e-mail/Jim McCarthy. wish you the best of luck. Will be checking daily to see your progress.
Tom & Marilyn LeDuc
Just got home from Texas (It's much warmer there - hated to come back to the deep freeze). Flew out and back from and to Rice Lake so I didn't get to the cities. Hope you are feeling better and your spirits are up. Roxy says you are having trouble sleeping - when I have that problem I just drink a quart of Windsor - it's lights out. Love ya - see ya soon.
Bob
Sunday, January 16, 2005
Sunday, January 16th
Scott is sleeping right now, another restless night, we are trying to figure out a plan to make him more comfortable, Thursday's visit will help out a lot in this area I feel.
Scott had a good day yesterday, phone calls visits, and e-mails. He watched a lot of football, still wishing it was Green Bay in the playoffs. Vikings play today...we are not sure...do we want them to win...make it to the Super Bowl then lose it all, or get it over with today???? Poor sports aren't we ;-) We will leave it up to Dante & Co.
Expecting Terry, Laurie and Rosie today, the kids are coming over too.
Colder than ever this a.m. -10 - Winter in Wisconsin - lovely time of year.
Roxie
Ed Knorn
Just wanted to say that your in our thoughts and prayers down in Hartford. We hope the very best for you and your family. Stay strong; Love mike,susan, and John Hedrington. :)
Love to all Suzie and Pat
Monday, January 17, 2005
Too BAD about the Vikes ;-)
It is nice to see all the postings, some of you I have not heard from for a while, I was thinking that we pretty much have the whole USA covered from East to West. I hear that the Class of 69 is in the blog now also, hi all!!
Scott
Maybe on your drive you should treat yourself...I am thinking McDonalds? Double Cheeseburger? ;)
Have a good day! Love you! Hi to everyone else!
Claire
p.s. I saw the band that Jordan manages this weekend, they are called T.U.G.G., and it was a great show!
I wanted to wish you well in your recovery. I can appreciate what you must be going through, I know when my brother Tom was diagnosed with a cancerous heart tumor it was devasating to our family. We thank God every day that he continues to do well.
Take Care and God Bless.
Mike Hofkes
PS - not sure if you received this initially as I used the wrong blog post comments button dated 1/10/05. NOT FOLLOWING SIMPLE INSTRUCTIONS !! OH WELL ! SO MUCH FOR LEARNING BLOG TECHNOLOGY.
I was sorry to hear of your health problems. My wife just went thru chemo and had surgery for ovarian cancer (from Nov '03 thru June '04), so I have some idea what you and your family are going thru. Stay positive good buddy, tho, I know it takes more than attitude to deal with this. Medicine is important, too. But it also takes friendship and knowing that your pals--old and new--care about you buddy. You know you have a lot of friends out here who are pulling for you. And your family will pull together like never before during this because you are so important to them all. When it hurts, just think of Denny Laramie and his "push yourself" drill sergeant attitude. Getting mad at him always motivated me! My best to you big dog. You are in my thoughts and prayers. Jim Hanson
Just wanted to add my "get well" prayers to all the rest you have received. I know you have the inner strength and love and support of family and friends to help you through this trial. I hope the Vikings loss helped to raise your spirits...it sure made me feel better. Hang in there. I'm rooting for you.
Sally
Class of "69
But like the Viking fans always say maybe next year!
I hope all goes well on Thursday!
Linda
Brother Mike gave me the update yesterday. You're a tough guy and with all of us out here saying our prayers (you're on my Hail Mary List) this thing will soon be something of the past. Sure was great seeing you at the Baby Boomers last August - you've changed so little since the days at Mickey D's - still one of the nice guys . . oh o.k. . . cute too! I will continue to check on you. Keep the faith. You, and your loving family, will see it through. Kathy Kuehnast Spraggon
P.S. Yeah, too bad about those Vikes - hahaha! I heard Leinies has medicinal/curative powers.
Tuesday, January 18, 2005
Monday Update
Scott had another sleepness night, calling the Dr. today to get something to knock him out so he gets some rest. He has pain but worry is setting in also. I think things will be better once we get the new plan from Dr. Greeno, we see him Thursday. I was planing to go back to work for a few hours this week, but instead I will stay at home.
Again, he really loves seeing all your comments (as I do also) on the blog or email him, he checks often, for the next couple days I think he is going to have to rest more when he can, visits will be at a minimum. Keep the emails coming though, he will return your calls & e messages.
Scotts personal email address - scott@hedrington.com
Roxane
It is 22 degrees this morning! Wow. A heat wave. Last week was just too cold. Not much going on in Wyoming. Will keep in touch. Toots
I think Scott should come here and do some work for me @DigiCopy.. I have alot of fun jobs I know he would be good at.. That will make him sleep!
Scott I know it really Sucks to not sleep, maybe get outside and go for alittle walk (I know the weather isn't the best) but it might help.
Hope you get some sleep soon!
Love you both
Julie
SORRY TO HEAR ABOUT EVERYTHINGS THAT IS GOING ON WITH YOU...
I REALLY MISS NOT SEEING YOU BOTH. I JUST WANTED YOU TO KNOW YOUR IN MY THOUGHTS AND PRAYERS. KEEP YOU CHIN UP SCOTT WERE ALL ROOTING FOR YOU. YOU'VE GOT A SMILE THAT WORTH A MILLION...
I'LL STAY IN TOUCH...
SUE ANN
Tuesday, January 18, 2005
Back on Track
This blog thing still amazes me, all of you who are writing me are forever etched into my brain, when I get by this cancer and get back on my feet you can all expect a personal pat on the back, and for all you railroaders donuts daily until I retire.
Having a bad night bolstered my determination to do whatever I have to, in order to get back what I have.
Thank you for your words and time, keep them coming, I'm listening.
My family has tightened up all around me, what a great group of people I'm related to.
More tomorrow,
Scott
I hope you both are sleeping right now. You write great messages Dad (you too, Mom)!
I hope you have the best day you can! See you later!
Love, Claire
Hi. This is Mark Cotton...I was in FIJI with Ben at Eau Claire...we met a few times. I saw Ben last week and he gave us the update. I'm sorry to hear about your health issues. Keep fighting hard; you and your family are in my thoughts and prayers! Keep writing...it's great to hear updates.
I bet you're anxious to see the Dr. tomorrow and get going with your treatment. When I can't sleep which is often I take things for it, but of course you can't be taking stuff right now. Terry says I'm like Elvis Presley taking stuff to go to sleep and needing coffee to get up. Did you get that puzzle together? I know by my non performance on Sunday you think I'm not good at puzzles, but I usually am pretty good at them. Really I am. That puzzle was impossible. Good luck tomorrow. We love you. Laurie
I bet you're anxious to see the Dr. tomorrow and get going with your treatment. When I can't sleep which is often I take things for it, but of course you can't be taking stuff right now. Terry says I'm like Elvis Presley taking stuff to go to sleep and needing coffee to get up. Did you get that puzzle together? I know by my non performance on Sunday you think I'm not good at puzzles, but I usually am pretty good at them. Really I am. That puzzle was impossible. Good luck tomorrow. We love you. Laurie
Wednesday, January 19, 2005
Wednesday update 1/19/05
Tomorrow is the BIG day, we see Dr. Greeno, we are to be there at 9:30 a.m., my sister Linda is coming along as another set of ears, and as our secretary, we appreciate that.
Scott has some calls to make today to the insurance company, and the railroad regarding his care and his work benefits.
Expect a late update tomorrow, but it should direct us on our way again for treatment, and a successful surgery to follow.
Thanks for all your support...we see the driveway fairy visited again this am. and got it all cleaned off...Thanks :-)
Roxane
Driveway Fairy? We need one of those:)
Sorry to hear your nights are sleepless. Hopefully they will get better once chemo starts. I think of you often, especially when I am rocking Owen at 3:30 am. :)
Good luck tomorrow. We are all praying for you.
Lots of Love,
Tara, Jason, and Owen
PS...The only book Owen will actually sit down and listen to is "Elmo In Dreamland" He loves it! Thanks!
Good luck tomorrow morning!
Wow--I need a driveway fairy too! Actually, Derek does a pretty good job of it!
It was 30 here today--felt wonderful--man--it has been COLD down here in Crystal Lake, IL! But I think even colder up there!
My parents say "Hi" to you and Roxie and send good wishes!
Do you have a sister that they called--chirp or something like that in H.S.--my sister Barb thinks she knew her?
Love this blog--it is an awesome way to communicate!!
Lots of Love,
Bernie W.
I LOVE YOU AND GODS SPEED
SUZIE
A very dear friend of mine by the name of Scott Mclean was diagnosed years ago with brain cancer.
He was told that he would die within 3 months and that the situation was hopeless.
Today Scott is as healthy as they come, he prayed fervently for a healing need, and now his story is featured on web sites and in medical journals all around the world.
His testimony and experience is one that i hope will prove an inspiration to you and he encourages people to contact him if they wish to know more of his ordeal.
His e-mail address is as follows;
boppit2000@yahoo.com.au
I know from personal experience that while it is a great comfort to have people you know and love being there for you and reassuring you, it is often more of a help to interact with a person in your position or someone who can relate to it as a result of past experience.
You are also in my prayers as many others have said, and i will ask that at my local church meeting on Sunday morning that we uphold your need.
Thursday, January 20, 2005
On their way to the U of M
I thought I would let you all know that my parents and my mom's sister, Linda, are on their way to the appointment with Dr. Greeno. They are equipped with questions, and hoping for a lot of answers. Send some good thoughts!
Love you all!
I hope that today's visit will help answer your questions and get you geared up for the road ahead. I am thinking of you all today.
Emily W.
Like Mark, I heard about your health troubles recently from Ben and wanted to let you know that you are in my thoughts and prayers. Stay strong and keep fighting for yourself and all these people who care about you.
Jeremy Diebling
Thursday, January 20, 2005
Scott's visit with Dr. Greeno - A New Plan
Well we are just settling down from our visit today with Dr. Greeno and his staff at Masonic Clinic, located on the University of Minnesota campus.
The treatment (beginning 1/31/05) is a 6 week plan of chemo/radiation. Treatment will be taking place on Mon thru Friday. After a 2 week recovery period, Scott is reevaluated for possible surgery.
Dr. Greeno has tripled his pain medications, Scott had another sleepless, painful night last night so we hope those days are coming to an end, the Dr. said he should be able to get him pain free with very little side effects.
Scott also got more good news that his diet can be changed to basically anything he can tolerate...just small portions frequently...calories are good!!! So he can add back some fats....he's hoping for cheese pizza with a mild sauce ;-) We will keep up with the protein shakes though.
So he's sitting back in the recliner right now, enjoying a movie, and hopefully soon will be catching a nap.
Thanks for all the prayers, thoughts and good wishes you are sending our way.
Love - Roxane & Scott
I hope everything is going well. We sure miss your
presence at work. Hope you feel better soon. eric
Glad to hear you have a schedule all set for your recovery back to good health. Linda called earlier and said your doctor was so nice and answered all your questions you had. Hopefully the higher doses of pain medicine help you with pain and lets you get some rest. Your diet sounds alot better too. You are in our thought and prayers everyday.
Mom and Dad
I love you little brother take care Your sister sue xo xo x ox ooxx..
It is great to hear the action has started to get Scott on the road to recovery. It sounds great that Scott is expected to be pain free with the additional meds. AND he can eat too! WOW Cheese Pizza, Mild Sauce and ONIONS, of course ;-) Just like everyone else, you are constantly in our thoughts and prayers. Love Ya.
Don and Mary Dachel
Sounds like you have a good plan to work with for the coming few weeks. We know you are in good hands.(Yvonne and I both went to school there and they must have learned something from us.) We hope you can get some better sleeping done.
Yvonne and Ross
Those protien shakes should put some muscle on ya. I put a little of the strawberry protien powder on my cereal. Tastes great. Won't be long and you'll be pumping iron too.
May the force be with you.
Jim McCarthy... :)
Just to let you know we love you and are praying for you everyday. We finished up in Rochester yesterday.
The Perrenouds
I have an elderly family member with cancer of the gums and throat. He starts radiation soon - everyday treatment for 6 weeks. The family and I have been looking for foods that he will be able to handle during treatment. He has a very hard time swallowing as it is - so he can not do anything much more than a milk shake. I was thinking that protien shakes mixed with smoothies might be good for him. I read a little of your blog and it looks like you have been through what he is about to go through. Any advise for a concerned family member?
many thanks
Friday, January 21, 2005
A much better nights sleep!!
Scott had a much better nights sleep last night, he went to sleep (in his chair) around 9:30, I had to awake him @ 10 to give him a dose of pain med. (I know I felt bad too) Put him to bed and off to dreamland until about 2am, he sat up a short while, took a quick release pain med, and off to sleep again...then yes (again) I awoke him at 6am for another dose of medicine, he is still sitting up, dosing though, so I think a little breakfast soon then on with our day.
We are expecting a snow storm today...not really planning on heading out anyway.
I am thinking of heading back to work next week, I will work reduced hours, due to Scott's appointments, but the bank has been wonderful to us, so everyone out there...
Have $$$ to Save?? Need a Checking Account or Internet Banking? We have wonderful Loan Officers and Great Rates for your Personal, Mortgage, and Commerical Loans, and Great Customer Service...Please consider First National Bank-River Falls/Prescott, a friendly community bank. (How's that for a sales pitch co-workers, I want you all to stay busy ;-)
Scott will do a hello later today. Take care and have a good weekend everyone.
More as we know it.
Roxane
Good to hear the sandman finally showed up!!
Yes, I am hoping we get a blizzard!! Bring it on!!!
You are such a brown noser!! What a plug for FNBRF--
Its sooo quiet around here without you!
Sounds like Scotts in good hands-with the new plan of attack--
Well I better get back to work--
Love and Hugs--
Bernie
We just learned of the site and blogger... and are heart broken from reading about Scott's illness. May God bless your family and keep you strong as you tackle the tough days and celebrate the successes!
Pete & Sandy Buss
Many beers were drank to eleminate the taste in our mouths. Pizza is a great choice. Best wishes Scott, Keep strong and try to behave yourself with all that time on your hands.
Ed
Glad to hear you had a better night of sleep! We'll come and visit this weekend-we have a puzzle to complete-right Dad? Talk to you later!
Love you!
Jen, Ben & Toby
I didn't even check this yesterday--thought that you would be too busy to get to it!
But you are right on top of things!!
So great that you can be in on this treatment!!
Glad that you can get more sleep too--that is very important, to me, anyway!!
I need my sleep!
Enjoy your days together and trips to and from treatment--you will spend more time with each other than you maybe ever have (except for maybe your honeymoon-right). So make the most of this extra time (vacation) that you have together. What I would give for more time with John! "One More Day"
When you are all better--you will be closer than ever!! Because you made it through a very tough time in your lives--together!
Love to you all,
Bernie W.
Donna and Earl
Friday, January 21, 2005
Start date change
The treatment looks like a February 7, 2005 start, we needed to get our ducks lined up a little different. I talked to Dr. Greeno's nurse today and we need one more appointment to come together and we will have our plan A. I always work better when I have a plan, and working for the railroad I realize that we may have to move to a different plan and that is why there are 26 letters in the alphabet. Also, we noticed that we are to be at the clinic Monday-Friday for treatment of one sort or another, we just didn't read our original treatment plan correctly, the Tuesday and Thursdays will be quick appointments, but none the less a drive up and back from Minneapolis. We will be able to drive that with our eyes closed, like some of the drivers do already.
We started getting Net Flixs again, my first movie revue, Van Helsing - "what is this movie about", more revues later.
Snow warnings today, all our local weather people are so excited, do you think they lock these people up at night. My report would be short and sweet, if you work inside you may have a tough time getting there, if you work outside, your day is going be bad. Either way have as good a day as possible, end of report.
Keep the notes coming, I'm reading as fast as I can.
Scott
I am glad to hear you are getting all your plans in order, I know that make you feel better.
as for the Movie "Van Helsing" it is different but I rated it around a "5" I liked the guy who also was in Xmen "wolfman" I think that is who he was.
Glad to hear you can eat again.. and sleeping alittle bit more.
Stay warm and rest
Love you lots
Julie
GUICK NOTE ON VAN HELSING MY GRANDSON MATTHEW HAS SEEN IT THREE TIMES AND HE SAYS ITS OK.
BUT THE MOVIE I ROBOTS WITH WILL SMITH HE SAYS THAT THE ROBOTS SCARE HIM SO HE GAVE IT A THUMBS DOWN.
TAKE CARE KEEP WARM AND REMEMBER THAT WE ALL LOVE YOU. SISTER SUE AND FAMILY.
Isn't netflix great? We get that here and you just can't beat the possiblity of about 12 New Releases a month for $18. I saw Hollywood Video had a special last week 4 movies for $20. Have you seen Eternal Sunshine of the Spotless Mind? Very weird movie, you'll be talking about it for days to come. Enjoy your movie, we're looking forward to getting "Friday Night Lights" :)
Love ya!
Amber Ryan and Abigail
All you need for those daily trips is a tape of "On the Road Again". I'm sure it will perk you up. I had to go up to Cody for 6 weeks of radiation and after the 2nd day it was just part of the daily routine. Take care. Toots
illness, but glad to hear you are in good hands with doctors and treatment plans. You can be sure there are many prayers for you at the Karker household!!!
We were going to drive to the Cities tonight to visit Scott Knight, so of course there is a snowstorm. Will make it a day trip tomorrow instead. Take care and stay warm - Mary
Glad to hear that you are sleeping better and watching movies. Sounds like what I've been doing for the last week. Give 'eh hell when you start the chemo. I know it won't be easy but when it's done and you are cancer-free, it'll be worth the effort.
I hate that you have to go through this. Dont' look at the "big picture," just look at every day and what you can do...sometimes minute to minute is a great goal. I'm looking forward to your movie reviews. Our kids made us suffer thorough Napolean Dyamite over the holidays. Try to avoid that one. I think you need to be 14 years old to think it is funny.
I'm off of work for a few weeks during semester break but am doing a long term sub for new mother starting March 1. I'll be checking in with you to make sure that you are following doctors orders.
Keep the faith...
Prayers,
Sally (just up the road in Hudson)
I'll be sure to stop by on Saturday to check on you and your wonderful nurse. Let me know if I can bring you anything. Love, Linda
We’re thinking about you and saying lots of prayers . . . Reading your blogs, I find I really miss Wisconsin. No one in Virginia knows Brett Farve’s birthday is Oct. 10th –same as mine. No one here understands snow. They predicted 5 to 9 inches over the weekend and everyone thought they’d be snowbound for a week. The grocery stores were stripped of milk and bread and celery (celery???). Thank God they spared the cheese. Mike and I figured no one would be on the Beltway or in the stores for once on a Saturday so we went to Home Expo. Just us and Dick Gephardt -- snow doesn’t scare him either.
We’ll keep praying for you as you go through this phase, Scott. Keep up the good attitude and get better! Jean & Mike Adair
Saturday, January 22, 2005
Darn it...
We got a lot of snow out there today, it finally looks like winter, it is suppose to start to blow around now, so I'm thinking sleeping in a recliner might be the best place to be today.
Enjoy the rest of the weekend.
:-)
Roxane
Love Ron and Joan
Sunday, January 23, 2005
Hello out there!
He will watch some football today I'm guessing and we are expecting Ben & Jen & Toby to come over for a visit from Jordan, Claire is heading this way back from her visit with Kyle this weekend, we will see her early afternoon.
Our niece Amber (Jim's & Kristi's daughter) called with good news....she and Ryan are expecting again, Abigail will have a new little brother or sister in late September.
Back to work for me tomorrow, so give Scott a call if you got some free time this week, we do have a appointment on the 26th early a.m for the placement of his chest pump for the chemo drugs, if we are lucky we will be able to see the radiologist also so they can mark the spots for treatment, otherwise that appointment is set for the 31st.
Thanks for all your thoughts and prayers, we are both doing ok.
Roxane
Amber
Happy Sunday. Football is on at our house today too, of course! Glad to hear plans are getting organized and starting. Thinking of both of you often. Roxi,with Scott sleeping in the recliner maybe it is time to get one of those double recliners so you two can still sleep together;-)
Hope things continue to progress well.
Love Ya, Don and Mary Dachel
SUZIE AND PAT
Monday, January 24, 2005
Happy Monday
Scott had another so-so night, so he will try to get a few hours sleep this a.m. - he's just not comfortable in the bed for long, so the recliner had become his replacement.
Before I leave this a.m. I will turn down the phones, so don't be surprised if he does not answer. Scott will check the phone when he awakes, I'm hoping he sleeps until I come home for lunch.
Scott will blog later today...he still has to give those movie reviews ;-)
Roxane
Plans are good. They keep us focused on what needs to be done and gets us there. You're on my Hail Mary list every morning on my way to work. It appears you have a great medical team and they are all on your side. You are surrounded by the best Scott; family, friends and medical. Take care. I'm keeping up with your progress.
Kathy Kuehnast Spraggon
Monday, January 24, 2005
Appointment moved up
I got a call today to move up my radiology appointment from 1/31/05 to 1/25/05, tomorrow at 8:00 am.
Dr. Lee wants to first map me out, then have a consultation and then work in a CT scan, it should take all morning, and means getting up early to fight traffic.
It looks like a warmer day and we will probably get there way to early as usual, because that's the way I am, right Claire.
Movie Critic Corner
Van Helsing - No, could not follow story line (What story line)
Manchurian Candidate - Yes - Try to keep an eye out for everything unusual, then watch it again, you'll figure it out and then not believe yourself.
I-Robot - Yes - Special effects are the movie, story line is usual, good guy, bad guy, nice girl, action.
Next apointment is Wednesday at 7:00 am for the implanted port, things are moving along, more traffic to handle, getting closer to start day.
New messages are coming on line everyday, thanks for taking time to drop me a note, I will always appreciate them.
Scott
So it's back to work for you. That's both good and bad! Did you get plowed out from under all the snow? I was in Milwaukee for the weekend...white-out conditions. Pete (my son) had to snowblow three times on Friday and Saturday.
Paul's first grandson was born on Tuesday; Kenneth Paul. Weighed in at 7lbs. 6 oz, 20 inches. He's a sweety.
Good luck with the treatments. It helps that you have confidence in your docs. Let us know if you need company or anything else.
Love, Chris & Paul
Tuesday, January 25, 2005
Home again.
The radiation consent form Scott had to sign was quite scary, they expect him to be a pretty sick guy because they have to do a larger area then usual, I guess his tumor is in a rather rare location.
So we have a great team of doctors to care for us. Dr. Chung Lee, Dr. Laura Wilson (resident), and Intern Marc Osburne. Dr. Lee said we will be like a family for these six weeks of treatment, so I thought you would all like to know our new family members names.
Tomorrow is another early am. visit. Up there about 7 a.m.; the drive was easy this a.m. we were about 45 min. early, but they were glad to see us since they were trying to squeeze us in between the set-up appointments.
Scott had another sleepless night but Dr. Lee prescribed a sleeping pill to try. Scott needs his rest and a lot of healthy food to eat, and calories, calories, calories the doc's said. Don't you wish someone would tell you that???
More as we know it.
Roxane
I tried to post a comment earlier today - don't know what I did wrong, so I'll try again. It sounds like you have a wonderful team of doctors. Just wanted you to know that our thoughts are with you and I pray for you every day.
Leslie
Julie Martagon at West
This is going to hard for both of you, but you will make it. You are in the process now so just show up for your appts. and do what they tell you do. Your doctors, nurses, radiation people, etc. want the best for you. They are going to do all they can to make you healthy again. Love you, Toots
We don't know you well, but are finding out a lot from the postings. You both have great personalities and are very supportive of each other. We know you from our contact with Ben and Jen. We think Ben is a great person and now I know where he got his personality. Gene and I liked both of you from our first meeting.
We check everyday to see how Scott is doing. I find him on my mind often. Hope all goes well with radiation. Keep up the possitive attitude and we will keep you in our prayers.
We don't know you well, but are finding out a lot from the postings. You both have great personalities and are very supportive of each other. We know you from our contact with Ben and Jen. We think Ben is a great person and now I know where he got his personality. Gene and I liked both of you from our first meeting.
We check everyday to see how Scott is doing. I find him on my mind often. Hope all goes well with radiation. Keep up the possitive attitude and we will keep you in our prayers. Gene and Jackie
Wednesday, January 26, 2005
At the U again
I want to thank everyone for their comments! We feel blessed as a family when we see how much support we have. Thank you. Everyone have a great day!
PS- I HAD A NICE CALL FROM HIM LAST NIGHT HE SOUNDED REAL GOOD AND IS IN GOOD SPIRITS.. ALL WIL BE FINE ALL OUR PRAYERS AND GOOD THOUGHTS ARE WITH HIM TODAY .LOVE.YOU ALL XOXOXOOXOXOOXOXOX
Please now...no pity posts for me. Let's keep this about Dad. ;)
Love, Claire
Unfortunately the Badgers lost to Illinois last night. Oh well. I don't know if Scott got to or wanted to see it.
We pray that all is going well and we'll see you in the neighborhood soon.
Yvonne and Ross
Wednesday, January 26, 2005
Port is in place.
Procedure went as planned, they took him in at around 8:15, we were back in his room @ 10:30, they let us leave just shortly after noon.
We stopped for his favorite meal....McD double cheese burger and even fries today and a Chocolate shake :-) Not too healthy, but he spoiled himself.
We spoke with our Nurse Judy today, she answered a few more questions regarding the treatment, and Scott signed the "official" documents today, and yes he is the one and only right now going throught this treatment phase @ Fairview-University.
We want to thank everyone for all the cards we have been receiving in the mail, I think everyday he receives another one. He also got more NetFlix's today....reviews should follow.
Scott SLEPT all night last night, only awoke to take some meds, and dropped right back off to dream land....luckily he did awake @ 5 a.m. guess who "set" the alarm clock...but did not turn it on???? Your right...
Roxane
Glad to hear everything is going good!!!
Sleeping all night that is GREAT!
Scott you eat everything you want I wish my Doctor would tell me that.
I would like to come over and visit soon let me know what works for you two
Love you, Julie
How did that cheeseburger, FF, & Sahke taste? Pretty good I'll bet.
Sounds as though things are on the move. You've got a great nurse and partner in Roxy make sure that you always mind her. By the way Roxy, no sponge baths for Scott I think he is looking forward to them ;-)
Always remember that I am here as are others and if you need to talk, lean on, or need something just ask. I'll be there for you.
All my Love
Bob
It was good to talk to you last night. Sounds like everything went well with your appointment today. Is the McD double cheese buger and fries your secret to the maintainence of your fine physique? I should be one to talk, right! From rumors I hear out of Green Bay we may see a few more changes w/ Pack.
Take Care,
Dennis Behnke
Thursday, January 27, 2005
Thursday Thoughts
Not much to do today, no calls from the doctors offices, so that means nothing has changed and we are on target for our dry run on Friday the 4th of February.
Roxie went to work today and I puttered around the house doing things I put off before, nothing heavy duty.
The lunch yesterday was good but I still want to have my own Luigi's PMS calzone when I'm done with this. They say not to eat what you like during therapy, because you then dislike it, I'm saving a few things for later that I can only picture in my mind for now. As for fast food I'll save room for the "King", still the best diet coke in town.
We have three new movies, something to do this weekend.
It's great to hear from all of you, any and all comments are welcome, and taken to heart.
Have a great day,
Scott
Glad you're keeping busy. I'm looking forward to our "dinner and a movie" this weekend. I can even cook this time Roxane! Love you Scott.
Linda
My parents called today to ask how you were doing--So they are thinking of you too. My sisters are asking often too and keeping you in their thoughts and prayers!
Hey--pretty cool how the Illini are doing! U of I is where Chad goes to school--he is not at all a sports fan though, or we would be going to some of the games! Kind of sad that they beat UW though--I am still a Wisconsin girl!
That is neat that you are getting movies from the net--catch up time. There was a day when I had seen every movie nominated for academy awards--but that was many years ago! These days, I am lucky to have even heard about them by then.
I have never met either of your kids--but I want to say, that they sound wonderful!! You must be so proud!!
Rox, I am glad that you can get back to work--they must miss you terribly--I can imagine how you keep them laughing!
We got a lot of snow last weekend--11-12 inches--I was very glad that the kids were home to help shovel! It is very pretty! Danielle and I went sledding on Sun--it had been years since I had done that --it was great fun.
Hope that you get enough sleep!
Take care of eachother!
Love,
Bernie W.
I wanted to let everyone know that April 15-16 is the Relay for Life in River Falls. My friend Emily Walker is the team captain. We have a large team this year, but it can always be LARGER. Email me if you want more information (claire@hedrington.com)and I'll hook you up with Emily. I am walking in honor of my Dad, and in memory of my aunt Kristi. We would love you have you on our team! Thanks for being a leader, Emily.
Thanks for the posts! Love you all!
Claire
Greetings from Dayton, OH. - You are in all of our thoughts and prayers. I just received the news from our classmate website(computer was down for weeks). I'm so sorry to hear the news, and always hoped there would be a cure for all cancer by this time in our lives. Medicine and research has made enormous strides to cures, and place many people in a remission state forever. Hang on to that hope, because Bill and I are there hoping and praying with you to beat this. I have known you since grade school - you are strong, you have many friends, and family to help you through this tough time. It sounds like you have one heck of a life partner and nurse too!
Carol & Bill Overman
Sounds like everyting is going as planned. Not that nice down here today, only 72 and a little cloudy. I hate days like this. Anyway Tanya and I will see you guys in a couple of weeks, we are looking forward to it. Keep the faith.
Love You
RK
My husband Bruce Erickson works with Scott and wanted me to stop in and let you know that you're in our thoughts and prayers everyday. Bruce is working this afternoon, but I've got the day off. Glad to hear that the port placement went well. That will make things so much easier for you, saves alot of time and unnecessary needle sticks. Keep up the positive attitude, it does make a big difference. So we're sending you both all of our best wishes and we'll be following your web page. Take care and know that alot of people out here are thinking about you. Paula and Bruce Erickson
Things are pretty quiet here today too. I played tennis this morning and as a friend who e-mailed me today said, "Wouldn't it be great to play like those guys on TV?" Us tennis fiends have been watching the Australian Open. I know that as long as I'm still paying to play and not the other way around, I haven't made it yet. ha ha Just dropping a line to say hi today. Keep hanging tough. Lotsalove....cousin Kris
Continued best wishes. We're continually thinking about you guys!
Jon, Shannon, and Mighty Quinn
I just want you to know that my wife and I are thinking about you. Just keep plugging away and keep your spirits high. We are praying for you.
Bev and Harry Bloedow
JUST A WORD FOR YOU MOM CALLED AND ASKED ME TO POST A MESSAGE FOR HER SHE SAYS IT WILL MAKE HER FEEL LIKE PART OF THE GANG.. SHE IS DOING VERY WELL WITH ALL THE COPYS I HAVE GIVEN HER SHE IS A LITTLE IMPATIENT THOUGH SHE NEEDS THEM FASTER BUT I TOLD HER ON SUNDAY I WOULD BE PRINTING ALL THE MESSAGES AND SHE CAN READ EVERYTHING I DO HOPE THAT SHE IS NOT BOTHERING YOU WITH PHONE CALLS ..WELL TAKE CARE AND ALL OUR BEST SUE AND PAT
MESSAGE FROM MOM.
MISS YOU AND HOPE ALL IS WELL NOW I CAN UNDERSTAND
MORE OF WHAT IS GOING ON AND FEEL BETER INSIDE. I
LOVE ALL OF YOU AND YOU ARE ALL IN MY PRAYERS EVERYDAY
LOVE YOU VERY MUCH MOM.
Friday, January 28, 2005
Friday update
He had a so so night, but got a few extra hours sleep this a.m. When he called me (10:30) he said he had been awake for a while...but he sounded pretty sleepy yet to me.
He had a good day though, got the oil changed on the car, visited with the neighbors kids and Linda, and he and Claire ran a couple errands before she headed to Eau Claire to see Kyle. He chaueffred me to work, and took me up to Wendy's AND Wal-mart!!!
We are back home now and ready to put our feet up and watch a movie. Everyone have a good weekend!
Roxie
Saturday, January 29, 2005
Saturday thoughts
Another up and down night for Scott, he's trying to hang in there until the treatment starts. His appetite is coming back though.
Hope everyone is enjoying the weekend.
Roxane
Getting ready to go to the Union Xmas party. I am sure your name will come up and all of our good wishes will be coming your way.
Think of you often, and by the way, no one can do a time check like you. Jim Schmidt
No snow here today, just cloudy but mild. January is almost gone and better things are just around the corner. Glad to hear you are able to eat more things. You have to stay strong and be patient, which is hard to do we know. Get a little rest and relaxation this weekend, you both need it.
Mom and Dad
We are thinking of you. Not too much happening here. The kids are all in Rochester this weekend. Isabelle is going to be in Tony's wedding. She'll be a pro pretty soon. She is really a jabberbox and is having fun playing with Tony's dog this weekend.
Take care.
JoAnn and Charlie
I SEE THAT YOU DID NO POSTING TODAY IS THIS A NO NEWS IS GOOD NEWS DAY ??????
I TRY TO KEEP TRACK SO I CAN LET MOM KNOW WHAT IS GOING ON SO SHE IS KEPT INFORMED . I DO HOPE THAT ALL IS OK.
WELL I WILL CHECK BACK IN ALITTLE WHILE YOU MAY BE OUT SHOPPING OR OVER AT THE KIDS .
LOVE TO ALL SUZIE
Sunday, January 30, 2005
No News Sunday
Scott had one of his better nights last night, and a quite day. He went on a drive to McDonald's again, and had his wonderful lunch. He got several phone calls, and just sort of roamed around and house and outside for a while today, he is excellent at getting all the laundry done, and is now getting my clothes closet in proper order ;-)
My sister Julie came over to RF, so Linda, Claire, and myself hit the January Clearance Sales. We all really got some great deals.
Just going to put our feet up and turn on the TV.
A OK
Roxane & Scott
Monday, January 31, 2005
Down and out Monday
It has been a differrent Monday, Roxie woke up with a hurting back, and Ben was sick last night. Roxie stayed home until 10:00 am and as far as I know Ben is still at home, I tried to influence Roxie to take it easy, but I'm not as good a nurse as she is, maybe I could go over and take care of Ben, that would probably drive him to work. Nothing else has changed, schedule is the same for me, were going out for lunch around 1:00 pm. It's always good to hear from everyone, thanks for taking the time.
Love,
Scott
I hope you ALL have a good day and start feeling better.
Jen! Let's stay healthy ok? Ok.
I've been reading your updates regularly and feel like I'm getting to know your family. I hope everyone feels better soon. Sounds like you all need some TLC. Any new movie reviews? Maybe you'll have to start watching the Illini. They're pretty interesting this year. We had to gather to watch the game with Wisconsin since my daughters are fans of the Illini and my husband is still a died in the wool Badger fan. I'm on the fence but leaning towards Illinois. A real fair weather fan!
Take care.
Bobbie (Young) Kieffer
Scott--Cool--so you even do laundry!!
I was totally out of comission all weekend--that flu that we couldn't get a vaccine for--I think! I wouldn't have taken the vaccine anyway. But...
Now Illinois has millions of doses of vaccines from Europe--too late--so guess who gets to pay for them?!!
Glad that you are getting out for lunch and stuff!
Going to be in the 30s here all week--not bad!
Glad that Roxie is able to get out and save you money on those SALEs!! Love bargains!!
Enjoyed your movie reviews!
Keep posting them!
Have a good week!
Love,
Bernie W.
Scott you sound like you are doing pretty well. Keep that up. The next few (and I stress few) weeks are going to be difficult for all of you. Build up your strength and your courage. Toots
Tuesday, February 1, 2005
Shakin' it up at Burger King!
Right now my Dad is at Burger King enjoying a milkshake! He told me he feels much better today, so he decided to run a few errands in town.
I am sure he or my mom will post later with more news!
:)
Tuesday, February 1, 2005
Tuesday - January where have you gone?
Thanks Claire for warming up the crowd for me, while I lollie gagged around at BK.
January is all but a dream know, I remember when some Januarys and Youth Basketball were the agony and the ecstacy, all rolled up into one huge ball of nerves, thank for the memories lets keep them that way.
I'm still working on the right combinatiion of pills to let me sleep through the night, not quite there yet, I still can't focus on one task at hand.
So as far as seeing people, I will have to let you know, I want to you get the full effect of a visit so I better let you know when I'm up to it.
Movie Time Revue!
The Terminal - Tom Hanks - Is there any show that his man can't make a hit? - YES
Collateral - Ton Cruise - I don't remember him playing a part like this before, I'm all for it, could have went on longer! - YES
Reading you all loud and clear.
Love,
Scott
Yvonne and Ross
I am one of Jenny's friends from high school and I just wanted you to know that you are in my thoughts and prayers and I wish you well. If there is anything I can do, please don't hesitate to ask.
Crisha Haugen
I hope you are all getting over your flu/cold symptoms. It's really going around.
Thanks for the movie updates..we will have to watch The Terminal.
Owen did a funny thing last night. He called the POLICE! Yep I was letting him play with the phone (dumb, I know) and he dialed 911 and they came to our house. Ofcourse the officer didn't believe me that a 10 month old called the police, but he DID! I thought you get good laugh out of that:)
Hope to see you soon. If we don't see you guys in Chippewa, we would like to come visit you with my parents when you are feeling up to company.
Have a good day.
Love,
Tara
Chico
Jan & Dan Gerold
Wednesday, February 2, 2005
Happy Ground Hog's Day
Kelsey thanks for lunch!!! We used your gift certificates today at Arby's :-) Back in RF about 2 p.m. Scott said it made the day pass quickly, the waiting for treatment is wearing on us all, Scott's ready to roll!!!
Thanks again for all the cards, and good wishes we are receiving daily, by mail, e-mail, blog, @ work, by phone - Scott, Claire, Ben, Jen and myself appreciate it soooooooooo much!!!
Roxie
Mom and Dad
We saw you leaving for the Doc's office yesterday. Hopefully the treatments will get underway, and without too much discomfort, soon. Keep up the movie reviews and pretty soon we will go to one if you give it a good recommendation. In the meantime, keep us in mind if you have any errands.
Yvonne and Ross
WELL THE TIME IS GETTING CLOSE AND MY PRAYERS ARE WITH YOU ALL . ENJOY THE WEATHER AND KEEP YOUR SPIRITS UP ALL IS GOING TO BE FINE. I CAN FEEL IT IN MY OLD BONES
LOVE TO ALL SUZIE AND PAT.
"May it be a source of inner strength and comfort to know our loving lord is always watching over you, and that now and always he's by your side."
p.s. I love the movie reviews...keep 'em coming =)
Thursday, February 3, 2005
Thursday
I fixed my hot water faucet today in the downstairs bathroom, so far no flood but I'm watching it, my railroad degree didn't quite cover this area. Roxie is taking tomorrow off for our dry run at the U @2:00 pm and another blood test.
If we don't see you physically, I feel you all spiritually. We will get together later when I'm done with this cancer.
Write when you can and thank you for the cards and gifts along the way, they are all special to us.
Love you all,
Scott
Friday, February 4, 2005
Friday - one more time
Today we have the final set-up appt. for radiation treatment. This will be a actual run though of the treatment, just without the actual radiation this time. I believe the time spent receiving the radiation is a minute or so, the set-up takes more time.
We may stop at the RR today, Scott has some papers to deliver to Bob. Scott is looking forward to the day he is back, he misses all you railroaders and the B.S.
Claire is coming along with us today, after the appointment at the U, we are heading to Jordan to have dinner and a visit with Ben & Jen (and Toby) too.
Not much planned for the weekend, I just am planning to keep Scott busy, too much time to think sometimes is a bad thing. He has cleaned or reorganized most closets and drawers in the house, but I can come up with another job or two!
Everyone have a great weekend!!
Love - Roxane
Friday, February 4, 2005
Changes...
The good news is that they feel they have the radiation "map" set-up correctly, though they check it weekly to make sure they don't need to make changes. We have a great guy working with Scott, a BIG kind of burley looking teddy bear type, his name is Tony and we especially like him, and go figure, he's a Vikings fan!!? Guess we should not have told him we liked the Pack ;-)
I'll let you know the changes as we do.
Roxane
Yvonne and Ross
It's time.
Go get it, and don't let ANYTHING stop you.
You've never backed away from a fight in your life, and I expect in a shorter time than you realize, you'll be beating on me again like when we were kids.
We should set a date for that, I'll start working out, you kick the first ass first, I'll be second.
Love you,
Jim
Saturday, February 5, 2005
Shopping Trip
Roxie and Claire took me on a little shopping trip, just a little "get me out of the house" trip. As for going to see everyone, we decided to put it off until we see how the first week or so goes. The more information we have the better it will be related to you all, so if you would all just hold off on any visists, we will use this site as our sounding board.
Personally, I'm afraid of the unknown, but I'm ready to face it with my troops right behind me, and I expect everyday to be a little more positive than the last.
Scott
The day is almost here to get started with treatments. Good luck, we'll be thinking of you as always. It most likely will be a little bumpy for awhile and then things will get brighter.
Enjoy all the pre-game and football game, not as exciting without the Packers in it. Maybe next year!!!
If you need anything just let us know.
Donna and Earl
Monday, February 7, 2005
The cure starts today!
Everyone have a wonderful day. Today is a good day, and with everyday following we will get one step closer to cancer-free.
Love to you all!
Claire
I didn't check in all weekend--Today is the big day--hope it goes well!!
The waiting is over--you are in the ring--score a knock out!!
We are getting over the cold/flu thing--Danielle missed her 3rd day of school with it--so brought her to the doctor--it is just that--cold/flu--she will pull through. Doctor said that it is a very nasty one this year! Glad that you didn't get it and have to delay your treatment!
Man, nice warm weather this weekend--but winter will return this week, I guess!
Dirt--loved the opposum story!
Scott, bet it was nice stopping in at the RR--won't be long before you are back there!
Having your daily appts. later in the day, might turn out better, huh?
Thinking of you and the kids often--you have a wonderful support system set up!
Best wishes today and always--
Love,
Bernie W.
Monday, February 7, 2005
Day one...done ;-)
We got home about 4:15 today, that included a stop @ Culver's for lunch/dinner. He ate it all up-plus a chocolate malt, we have to keep the calories up, I hope I'm not the only one gaining weight though!!
The treatment went well, we got a couple new meds for the expected nausea that could follow for 2-3 days. We also got our schedule set up, now we have mostly a.m. appointments, I should be @ the office by noon Tuesday-Friday, provided Scott is not too ill from the chemo on Mondays.
He had his "port" put to good use, he gets a chemo medication 24/7 through that, he just carrys around the rubber ball like object (they call it a grenade) with the medication in it, that drug is refilled each Monday after the other meds/liquids are run in him through the same "port" in his chest.
We were done with the chemo about 12:15, (go figure we got there 50 minutes early this a.m. also). Roads were dry and clear, and traffic was good and steady. We then went to radiation had a short wait and appointment, then back to the clinic around 1:15, re-set the schedule and waited to see the Nurse regarding some trouble Scott was having with his ears, turns out they are good though.
So.........day one in, hope they all go this well for Scott.
Early to bed tonight I am sure.
Roxie
Jon, Shannon, and Quinn.
So glad to hear "day one" went good, better schedule for you too. Bet you'll both sleep better tonight. Keep us posted, sure nice you have this blog.
Mom and Dad
Tuesday, February 8, 2005
Home Again - Day 2
We had an appointment for radiation @ 9:45 this a.m and got to talk with our RN, Judy, she recommended an increase of pain meds for Scott, and we will begin that this afternoon.
The radiation went well, we will check with radiation tomorrow to see if this increased pain is perhaps related to the treatments of the tumor.
Scott is hanging in there though, so don' worry, he's sleeping in this recliner right now.
Appointments tomorrow @ 8 and 9:45.
Thanks for all your thoughts and well wishes.
Roxane
Sorry to hear the pain is winning, maybe the meds will help I hope!
You are always on my mind, Love you both
Let me know if I can do anything
Julie
Best wishes to both of you.
Yvonne and Ross
Glad to hear the radiation went well and we hope the sleep is better tonight. We think of you often...
Love -
Jon, Shannon & Quinn
HANG IN THERE I KNOW IT ISNT EASY BUT YOU ARE A FIGHTER AND THIS IS NOT GOING TO GET THE BEST OF YOU. HANG TOUGH AND GOD WILL PREVAILE . THR RECLINER IS OK FOR NOW BUT THAT TO WILL PASSS AND YOU WILL BE OK.
LOVE TO ALL SUZIE AND PAT.
Pain is so hard to deal with--especially when you just want to get to sleep!
Winter is back down here in Crystal Lake, IL--it was around 30 yesterday--but felt so much colder--because we had a few warm days before that!
Can't wait for Spring!
Sure that you can't either!! By Spring-this will all be behind you and you can get out and enjoy the great outdoors!
Hang in there-
So many thoughts and prayers are coming your way!!
Love,
Bernie W.
Wednesday, February 9, 2005
Wednesday - Day 3 - A OK
He just got a shot today for chemo, and a short appt. w/ Dr. Lee regarding radiation treatment side effects, she has us more than a little leary, but she assured us that they would keep a good eye on Scott for anything they can detect early before he has a problem. Scott also asked his radiologist (Brent) if they check from time to time the tumor size or status of things, he said basically we do the 6 weeks of treatment and evaluation is done after, he also said, how Scott feels tells them a lot regarding treatment effectiveness.
Scott is now doing his household chores, and I'm getting ready to head to work for the afternoon. I will try to get Scott to "blog" his movie reviews later this afternoon.
Back to the U @ 9:45 tomorrow, radiation only.
Roxane
Kyle and I will see you later tonight!
Love, Claire
Glad to hear you had a good night sleep. Good advice from Brent too, the more you tell him the easier it will to keep you comfortable with the side effects. Sounds like your schedule it pretty good too. You had to wait so long it must make you feel a little better that treatment have started. Think of you often and hope things go for you. So nice to have this blog, make us feel better to know how you are holding up daily.
Love you
Earl and Donna
Wednesday, February 9, 2005
Movie Reviews Running Late
When I touch these keys I fall asleep, Here's the short but sweet reviews,
October Sky, Good story line, fun to watch, over before you want it to be. YES
Shrek II, You should always feel that the Ogre should win. YES
When Harry Met Sally, The girls said it was "Great", I kinda nodded off and on. YES
There are people who get paid for this. I'll stick to railroading,
See Ya!
Scott
Love You!
Ben, Jen (and Toby too)
Just to let you know we are thinking of you and praying for the best. Charlie is a terrible communicator, but know that you are in his thoughts also.
Take Care.
JoAnn and Charlie
Thursday, February 10, 2005
Thursday
Not much going on today, radiation at 9:45 am, home by 11:00 am. Rox went in to work for the day, I'm starting the railroad puzzle, wish me luck, I'll need it.
Love you all,
Scott
Got about 10% of the treatment behind you, got a nights sleep, maybe this will level out for you a bit as it goes on. I hope so.
Keep it up big brother.
Love ya,
Jim
Sounds like you are getting a system down to get to Scott's appointments and still get back to work. I was glad to here that Scott has a list of chores he is responsible for. Nothing like always having something to do, Right Scott;-)
We are so thankful for the Blogger so we can keep up with how you both are doing.
Love Ya,
Mary & Don Dachel
The most difficult part of anything new and strange is getting started, but you've done that so the rest will just fall into place. Still in my prayers. Hey, how about a review of U571? It's a good 'un! Great weather coming this Saturday and I hope you feel well enough to get out and enjoy it a bit. From what I read you're quite the organizer. Perhaps you could start a set of classes for husbands who aren't! Stay strong and tough.
Kathy Kuehnast Spraggon
Friday, February 11, 2005
Week One Completed
A beautiful sunny day here in RF, expected highs in the 40's.
We don't have much planned this weekend, laying low I think.
Have a good weekend everyone, thanks for all your thoughts and prayers, & cards.
Scott & Roxie
We're thinking of you
Amber, Ryan, and Abigail
Donna and Earl
Keep up the good work. See you next week.
Love You Guys
Krause Gang
Glad to hear week one is done and you are doing ok, Scott. Just watched the weather and see the weekend is going to be warm and sunny. Should be nice for you guys just to sit back and enjoy it.
Later,
Mary and Doc
Sunday, February 13, 2005
Sunday morning update
Saturday was a quite day for us, we went out for a short walk and went downtown for lunch @the South Fork, they have a hot roast beef and mashed potatoes sandwich on the menu everyday...Scott loves that. Then we did a little shopping in Hudson. It got up to 53 degrees here yesterday!! But that is going to change Florida people, so bring your warm duds when you make the trip next weekend.
Ben and Jen are heading this way today for a visit, we will see Claire later also, she is in Eau Claire this weekend visiting her favorite policeman ;-)
I sure hope all you out there have done your Valentines shopping, back at the U on Monday for a long day, it was nice to take the break for the weekend though.
All our love
Roxane & Scott
WELL JUST ANOTHER DAY HEAR IN CHIPPEWA THE SNOW HAS NOT BEGUN TO FALL AS OF YET BUT WE ARE EXPECTING IT ANY TIME. GLAD TO HEAR THAT YOU ARE OUT AND ABOUT LIKE I SAID NOT MUCH CAN KEEP YOU DOWN AND THAT IS GOOD . HAVE A NICE DAY , AND HAPPY VALENTINES DAY TO ALL LOVE SISTER SUE.
Hope that you both have a very Special Valentine's Day!
Any other year, you would both be at your job all day--this year-you will be spending most of the day together--just that will make it special!
It is cold and rainy here today--so just might curl up with a movie. Rented "Ray" last night--Derek and I thought that it was pretty good.
Love,
Bernie W.
Monday, February 14, 2005
"Oh, the weather outside is..."
Whoa...we woke up to about 3-4 inches of snow here in RF. I guess Winter is still around!
Mom and Dad are on their way to Fairview, and will be there most of the day as Monday is the LONG day.
Hope everyone had a wonderful weekend!
Hopefully you will hear from Mom or Dad by the end of the day!
Love to all, and a Happy Valentine's Day!
Claire
Happy Valentines day to you too! We got about 3 inches of snow here, really wet and heavy. Hope your Dad has a good second week, pretty hard on the whole family I'm sure. See you this weekend.
Grandma
Monday, February 14, 2005
Home again - 2nd Monday done !!
His blood counts were good (down from last week though) for treatment , the drugs will lower all his counts, they expect this. His weight is also down though...that is not so good, his radiation Dr. gave him a talking to though, she said now that food IS medicine, and sometimes medicine does not taste good, so he better eat, even if it tastes like cardboard, so again.....he has to eat, eat, eat, high calories...anything goes...so we stopped at Culver's cheeseburger and malt, he even liked it :-)
Tomorrow our radiation appt. is at 10:30...let's hope for a good restful night tonight, good roads tomorrow, and we'll do it all again!!
Happy Valentine's Day.
All our love... Roxane & Scott
We're leaving for Florida tomorrow to visit one of our boys(38 yrs old.) We'll be back about March 5.
Keep making the doc happy.
Yvonne and Ross
Tuesday, February 15, 2005
Tuesday, February 15, 2005
Tuesday
Just got back from radiation, quick trip, no thrills. My back kept me up last night and is still working me over pretty good. Hope you are all well, thanks again for all your good thoughts. Talk to you later.
Love Scott
Glad to see things have calmed down alittle with the treatments. Hope things keep progressing without any new items! By the way, how can we all get on your diet of "eat, eat, eat!!" We think of you all the time and pray for you every Sunday at Church!! Keep up the positive thoughts. We didn't get as warm as you did last week, but we didn't get any new snow either so I guess we are about even! When is spring again - soon right??
Love Mike, John, & Susan (Hartford,WI)
Glad to hear you had a normal drive today. Hope you are getting some rest, hopefully that will help your back feel better. Just eat,eat,eat, must be hard to do that after awhile of not eating this or that. Just keep trying anyway. Think of you everyday and soon the ordeal will be over for you and your family. There are better days ahead for everybody.
Donna and Earl
Wednesday, February 16, 2005
Wednesday trip..
Scott had a better night last night, but still needs more rest to catch up from the Monday treatment, Judy told us most Monday nights & Tuesdays will be rough spots, doesn't seem that Wednesday will be too great either ;-) The nausea has set in a bit, but we got new meds to treat that, we just need to figure out our timing of "break through" doses.
I left him @ home to take a nap, and off to work for me for a few hours, work is going fine for me, the bank has been VERY understanding of our schedule and needs at this time.
Half way through week two....
Roxane
Yesterday the 15th. was my birthday and went to mass for the two of us so that the man up stairs will keep an eye on us and keeps us going. Our weather in Calif is now RAIN,RAIN & MORE RAIN, but I don't think I need to rent a boat yet. Have you and the family in my thoughts and prayers and I see that the weeks are going by and that your doing great. I check on the updates, but for awhile I had lost how to get on. Love you much and hope your enjoying the little jokes I send. Take care and keep up the good Job. Love, Juanita 2-16-05
Thursday, February 17, 2005
Thursday evening
Scott is getting along ok, one more visit tomorrow and week two will be history.
He is really trying to get more food down, it is hard for me to understand that he just does not want to eat, he never had a problem with it before for sure, but he also knows that food is his medicine right now and he usually follows his nurses orders ;-)
My brother(Rod) and his girls (Tanya & Krista) arrrived from Tampa today to spend the weekend in RF, they did not bring the warm weather with them though. They are staying with my sister Linda, we got to visit with them tonight for a while. Scott is really not a social guy right now, too many worries, and not feeling up to par, but he knows that everyone is in his corner and he appreciates that so much.
Thanks for all the emails & cards, they really brighten his day.
Roxane
Friday, February 18, 2005
Update on Friday visit!
I know you all know this, but my Dad appreciates everything he sees, and hears, from every single one of you. Thanks!
David Viscott
Friday, February 18, 2005
WEEK TWO DONE !!
Looking forward to a relaxing weekend, Ben & Jen are heading this way tomorrow, and we will celebrate Claire's 24th birthday this weekend. My sister Linda is having us all over for dinner tomorrow night since we have the Florida Krause's in town, I am hoping Scott is up to visit with everyone there, but his rest, comfort and eating are the highest priority for us right now.
So....bring it on week 3, so far we are going along according to "plan" per Scott's RN Judy. We are seeing such professional and caring people, they are all working so hard to make this all as comfortable as possible for him.. it makes me tear up.
Roxane
Jon Shannon & Q...
Bloomington, Il
Saturday, February 19, 2005
Saturday
Feeling good today, I found a new drink Gatorade, orange, seems to keep me liquid.
Dirt I will tell Harley you miss him.
Good to hear from Mike, Sue, John,
and Jon, Shannon, The Mighty Quinn,
and Gene and Jackie,
and Jerry and Bonnie.
Sue thanks for your note, and the one from Mom, your great for doing that.
Happy birthday Juanita and many more, and a special Happy Birthday tomorrow to my "little girl" Claire.
Movie Revue - Bourne Supremecy - They just won't leave him alone - good action - YES
Harry Potter - The Prisoner of Azkaban - fell asleep - try again later.
Sully thanks for taking on the GEL Claims, good luck. Bob thanks for changing around my vacation
All cards, E-mails, Blogs, are welcomed, thanks for your support.
Love, Scott
We are down at Mike & Susan's for the weekend. Went out for supper. We tried calling earlier but must be at Linda's.
Heading home tomorrow.
Enjoy the weekend & good luck in week THREE! Hang in there we're pulling for you.
Love, Steve & Judy
MOM IS SO HAPPY WHEN YOU CALL SHE IS RELEIVED, AND THEN ASSURED THAT YOU ARE FINE SHE WILL GET ALL THE PRINT OUTS TOMARROW . AND SHE SENDS HER LOVE TO YOU AND THE FAMILY. AS SHE WOULD SAY
GOD BLESS YOU ALL LOVE MOM AND SUE....
Looks like a new format, hope I am doing this right. Glad to hear that the Gatorade is working...Take care. Thoughts and plenty of prayers...JoAnn and Charlie.
We have a snowstorm going in the Fox Valley of Wisconsin, so in anticipation of staying home all day, we picked up "The Terminal" last night to watch today. Your movie reviews come in handy. Thanks. We'll let you know if we like it. Good luck in Week #3. You are always in our prayers.
Sonja & Allen
Sunday, February 20, 2005
Sunday's update/Claire's Birthday :-)
We had Claire's Birthday Breakfast this a.m., Ben and Jen stayed here last night so we could all be together to celebrate her 24th!! After the Krause bowlarama - Claire had Rod and Linda, her brother and Jen and cousin's out on the town last night, showing them the sights and good cheer that RF has to offer.
We had a nice visit with the Floridian's, they got some cold weather, and snow this a.m. plus a messy slippery drive in to the airport around noon today, Rod got to revisit his WI winter driving skills. They should be on their way via NWA back to sunny Tampa as I type this.
We are going to watch Harry Potter now, Scott will try to stay awake so he can give a review later. He did not watch "The Notebook" with me Friday night...so my review is good, a few tears, if you want to cry...rent this.
Take care...all ready for Monday.
Roxane & Scott
Keep your mind and spirit strong while your body fights for health. You have been blessed by all of your wonderful friends and family who surround you with love and prayers. Toots
Monday, February 21, 2005
Monday, Monday...
My Mom asked me to blog this morning since they are going to be busy all day!
Everything seems to be going just fine over at Fairview today.
Thanks for all the thoughts and prayers, I believe they are working!
Love to all...
Claire
p.s. I made some cheesy potatoes this weekend, and my Dad ate a lot of them! Maybe it was the bag and a half of cheese, or the almost 2 lbs. of sour cream...either way...he was happy!
Sounds like Claire had a great birthday!
Yes, 'The Notebook' is a tear jerker.
Rox and Scott, hope that you have a good Monday and start to week 3.
I heard that there was a lot of snow up there this weekend--maybe that will be the last!
Scott--stay strong--eat, eat, eat!!
Hugs and Kisses-
Bernie W.
Monday, February 21, 2005
Monday's done :-)
Radiation was ready for us too. Dr. Lee was happy with Scott's weight gain of 4 lbs.??? We think all the fluids they had just given him at chemo helped that number along, she wanted to check his pockets for lead weights, it sure made her smile.
Everything else was good also, blood counts etc., Scott even said when we got home...knock on wood, I feel good :-)
So he is having a snack right now and will probably both take a little nap.
Scott will start having extra fluids each day now, and our appointments will all start @ 8:30. The extra fluids helps relieve the nausea side effect from both the chemo and radiation treatments.
A Ok Monday...three more to go!!
Roxane
Looks like the eating part paid off for Scott also, if thats what it takes we can do it every week.
Loved seeing everyone and look forward to doing it again in June.
FL Krause Gang
p.s. - Dirt, you are right I am finally "50".
Glad to hear about your monday appointment went so well. Always good to get the week on a winning start. Your home nurse must have you on a good routine also. Keep it up, we are thinking of you and hoping for more good news. Love you.
Donna and Earl
M.Run
way to go . keep up the good work the time is flyig by now the weather will get better and the drive shorter.
Love to all , sister Sue
Just getting caught up on your updates. Glad to here you are "gaining weight" Scott. Boy, that isn't something most of us has wanted to hear in the past. Keep up the good work (both of you). Before you know it you will be able to sit outside and enjoy Mother Nature, that always brightens the day.
Love ya,
Doc and Mary
Tuesday, February 22, 2005
Tuesday update
Scott had a pretty good night last night. If you compare it to the other Monday's it was almost great...just a lot of waking up he said.
He is not doing so well today though, he has a lot of nausea, and is also very tired. I'm sure it is due to the treatment yesterday. They are giving him fluids and meds as I type; I am thinking we will be here another 3/4 hour or so. Radiation is already done for the day. We have been expecting these kind of days, and according to the nurse's, this is very typical.
When I take him home and settle him down, perhaps I will go to work for the afternoon, but I will see how the ride home goes.
Thanks for all your thoughts and comments.
Roxane
Wednesday, February 23, 2005
Wednesday done....1/2 way thru week #3
He is still having trouble with nausea and tired feelings, but is doing "great" according to Lynn, RN for radiology, she said they are causing him his problems. His weight did drop back down but he has held on to at least one pound of the gain.
I will be heading to the office this p.m. - I'm thinking Scott will nap.
Take Care
Roxane
I AM SO GLAD TO HEAR THAT YOU GOT A GOOD NIGHTS SLEEP AND IN YOUR BED INSTEAD OF THE RECLINER, THIS IS A MAJOR STEP AND THERE ARE MANY MANY MORE ON THE WAY. HAVE A NICE DAY. LOVE YOU VERY MUCH. MOM H.
CALL IF YOU FEEL LIKE IT LOVE TO HEAR YOUR VOICE. HUGS ALWAYS
MOM H.
I'm glad that things are finally looking up...including the scale=) We look forward to seeing Rox show up for work every afternoon.....we miss her smilin' face and it is a good sign that you are doing good!
If you are up to it...we are planning an El Paso run Friday, March 4th in celebration of Monica's birthday. She's never been there! Boy is she missing out!
Thanks for the movie up dates, but on to bigger and better things! How about that American Idol? I'm thinking that Linsey, Janay, Anthony and Nikko are being voted off. Rox is the "Simon Cowell of FNB" so I can't wait for her predictions!
Take care and keep your spirits up!
Hoop E
Keep up the good fight!
Thinking of you often!
Take good care
Love,
Bernie W.
So glad to hear the news about sleeping in bed. Every little piece of good news must make you feel good and makes you know everything is going as planned. Looking forward to more good news! This week is almost over, just keep your spirits up. Thinking of you daily as always.
Mom and Dad
Never thought I'd be hoping you could spend some time in bed. After all, I think that's where you were on those Saturday morning "weed the garden" days when your little brothers were out trying to meet the mark. But then again, when you pulled that full row of carrots, Dad was probably glad you were a sleeper.
Sleep on big brother, Randy isn't there to get your ire up anymore, course you might want to visit (and harass) him.
Keep it going.
Love you,
Jim
Thursday, February 24, 2005
Thursday update
He is resting a lot also, he needs it right now. We did see Dr. Greeno today...first time in about 3 weeks...he said we are doing fine, just work on the nausea control. Scott told Dr. Greeno he was worried about his weight going down because of his not being able to keep things down, and he sees Dr. Lee tomorrow. I told Dr. Greeno, that Scott was afraid of her...he laughed and said most people are :-)
Ben tells me that we have over 5000 "hits" to this web blog...and you can "goggle" Scott's name and his page will be listed under the first web site offered.
Keep on bloggin'
Rox
Sorry to hear that you are having problems with your stomach , Just hang in there it will get better and do not let that Dr. scare you . You are twice the man she is and we all know it. HANG TOUGH AND GODS SPEED BE WITH YOU AND THE FAMILY, LOVE ALWAYS YOUR BIG SISTER SUE, LOVE YOU XOXOXOXO-----
Friday, February 25, 2005
Week 3 - The Good, the Bad & it was a little Ugly
Week three.........DONE. As this is titled Week 3 was all of the above and more.
Scott slept well last night, even though we was still quite queasy when he went to bed. The a.m. started out slow, but after we arrived at the clinic and they got more fluids going into Scott - (a 2 bag day) "tank him up" for the weekend according to Judy, RN. He was feeling better as we left, and eating snacks and drinking his meal replacements well, 3 bottles by noon today.
Scott's weight was down 5.4 lbs. from Wednesday, that sure got everyone's attention...but we told them we were sure that once Scott gets ahead of the nausea, his eating will pick back up, he really trys to eat. So....since he was feeling better when we left the clinic @ 1:30 we stopped at Culver's on the way home to celebrate getting thorough the week. Scott was unsure, but tried the chicken strips and a few fries, went down good he said, of coarse a chocolate shake on the side. All is "holding" well I am happy to report.
Planning on a quite weekend. We will celebrate another birthday though...
Happy 26th Birthday Ben on the 26th!!! Your golden year!!
Thanks again for all your thoughts and prayers you are sending our way, we appreciate it all so much.
Roxane & Scott
Donn and Earl
OK Scott you are 1/2 way through--keep up the good work.
Bummer-- that you are actually being encouraged to eat anything and everything high in calories--but you can't even enjoy it!! Well, just remember that it is medicine.
Hope that you enjoy your quiet, laid back weekend. Eat a lot of cake and ice cream on Sat.!!
I think of you constantly--
and send my love,
Bernie W.
Fast Eddie
Glad to hear you got through week three. I am sure you can see the light at the end of the tunnel by now. Stay positive, keep a stiff upper lip, make sure your glass is always half full and you will make it through all of this. Thank you Roxy for all of the support you give Scott. They say that behind every good man is a GREAT WOMAN.
All my love and support to you both.
Bob & Susan Rada
Saturday, February 26, 2005
Saturday, sleep in.
We'll have a weekend off, and the start on Week # 4 Monday.
I'm on the downhill side of the mountain, stolling down day for day.
My weight and stomach are the issues for now, Roxie and I are working on them daily.
Movie Revue - Friday Night Lights, excellent sports show.
Billy Bob is really an actor, to go from bad Santa to a high school football coach.
See it for sure, rent it , buy it, you won't regret it - YES.
Happy Birthday Ben, we love you.
Have a great week end everyone.
Love to you all,
Scott
Wilf gave me your website at work and I just wanted you to know we are all thinking of you. This is nice to keep track of your progress this way. Just know that we all love you and are praying for you every day! I'll keep cking on you, and reporting to Mom and Dad.
All our love to you
Patty (Jerry and Laures and the rest of them too)
Sunday, February 27, 2005
Snowy Sunday
A snowy morning in RF, I would guess we got a couple more inches of the white stuff, 34 degrees out. The driveway is already cleaned off...Thanks Mark!! What great neighbors we have!!
Scott had a good day yesterday, a couple visitors,a few phone calls, and he was outside for a little while to push a little snow around and chop some ice off the driveway, while I ran to the grocery store. I had him eating frequently and everything stayed in place ;-)
He also had a good night, and is still sleeping as I type, so I am expecting a well rested guy when he awakes, we can't help but think about Monday again, but hoping for a good week, and staying ahead of the treatment effects.
Roxane
After a couple days of rest and relaxation you'll be already for another week of treatments--hope you have a good week. Just hang in there, everyday is closer to the end of treatments. Thinking of you always in our prayers.
Not much snow here, just a couple inches.
Love you,
Mom and Dad
Just to let you know that you are still in our thoughts and prayers. Take care and keep thinking good thoughts.
Charlie and JoAnn
P.S. No Culver's in Wyoming :( It sounds really good.
Love ya, Steve & JUdy
Monday, February 28, 2005
4th Monday....done
It was a pretty good day, Scott was feeling ok this a.m. and ready to go. Visited with Dr Greeno's NP Tanya, she said things were going really well and to keep up the good work that we are doing, we seen Judy our Clinical Study RN, and Laura , our infusion RN, they are all such great people, I hope no one reading this ever gets to meet them...at the clinic anyway. Dr. Lee gave us the A OK, Scott's weight was back up to only a pound less then last Monday, but she said we were not fooling her with just getting all the fluids upstairs, but she was happy with his progress so far.
Let's hope for a good Monday evening/Tuesday, back for radiation and fluids tomorrow, we will get started around 9 tomorrow, we asked to get pushed back a bit due to traffic, and maybe getting a little more sleep in the a.m. Scott is tired right now, but the chemo and radiation does that when he gets them both in the same day.
So we are off to a good start this week, only two more Mondays to go, last treatment day is scheduled for March 16th so if Scott stays healthy, physically able, and all the test numbers stay "good" we will continue straight through, without a rest week, (which I guess is not uncommon) here's hoping!!
Roxane
How about trying a sports review on the Badgers vs Hoosiers, tomorrow evening.
Remember the key to movie reviews. If John Wayne(or Marilyn Monroe) isn't in it, its not worth watching. You're probably not old enough to remember them. Yvonne and Ross
Tuesday, March 1, 2005
In like a Lion....
I have decided to stay at home with Scott now until the treatment is done, he needs his "home nurse" full-time now.
Thanks for all your thoughts and prayers.
Roxane & Scott
Roxie--make the most of your 'vacation' from work.
I am sure that they will miss you there, I can only imagine the good humor you bring to the workplace. And I know that Scott brought a lot of laughs to the RR--I am sure that they are anxious for his return too.
Do you get to eat like Scott does too?
Have a good week-
Love,
Bernie W.
Tuesday, March 1, 2005
Tuesday later
Just got home from the U.
Scott is feeling a bit better now, he rested most of our time there. We seen Dr. Greeno for just a minute and he asked Scott how he felt today...Scott paused..and Dr. Greeno said it's ok to tell me you don't feel that great, then he said , "hey you are at week 4, treatment end is near!".
We did not introduce ourselves, but study patient #2 started treatment today while we were at the clinic...we remember how we felt on that day - so perhaps Judy will have us meet if they want to.
We stopped in Woodbury @ the Arby's on the way home, sat in the sunshine and enjoyed a sandwich. The sun is great but it's cold outside today.
Hanging in there...
Roxane & Scott
Remember we're right next door and can run errands or whatever.
Good work on keeping the blogs up to date. Lots of people are praying and pulling for you.
Yvonne and Ross
I am sorry that this week is so ugly. Hopefully you will have a restful, enjoyable weekend.
I can't remember if you said you watched the movie Ray or not, but it was very good. So check it out if you haven't seen it.
I really appreciate your updates. I check this a few times a day so I can keep up with everything.
We continue to pray for you and we know that better days are ahead.
All our love,
Tara, Jason, & Owen
Wednesday, March 2, 2005
Wednesday - almost 1/2 done with #4
Scott was a sick guy again this a.m., radiation went ok, they think he is just dehydrated. So two more bags today, perhaps three if he seems still low after #2.
His stomach has settled down, and is eating and drinking.
He is resting right now and I'm watching Ferris Bueller's Day Off, believe it or not I have never seen it.
Roxane
Glad to hear your staying home from work to watch over your patient. always nice to have someone around when you are under the weather. Scott, hope you are feeling better after getting all fueled up again. Thank goodness for all the bags they pump into you, keeps your strength up. Hope you are getting some sunshine even though it is cold outside. Always thinking of you.
Mom and Dad
SORRY TO HEAR THAT YOU WERE NOT FEELING THE GREATEST, BUT YOU HAVE A GREAT NURSE AND SHE WILL TAKE GOOD CARE OF YOU . MOM IS DOING FINE SHE SAID YOU CALLED HER A LOT YESTERDAY AND THAT MADE HER HAPPY , NOW SHE IS ALL WORRIED ABOUT JIM, BUT THIS WILL BE OK AS SOON AS HE CALLS AND TELLS HER HE IS FINE. YOU TAKE CARE AND KEEP UP THE GOOD REVIEWS I LIKED FERRIS AND HAVE SEEN IT MANY TIMES. CAN NOT BELIEVE THAT YOU ARE SEEING IT FOR THE FIRST TIME . TAKE CARE LOVE YOU ALL SUE
Wednesday, March 2, 2005
Thirsty Wednesday...
I will review Ferris Bueller's Day Off....very good and funny, rent it again, I'm sure I am the only person who has not seen it before.
Roxane
Ferris Bueller is one of the few movies we saw in the past. It was good but it wasn't John Wayne(or Marilyn Monroe).
Keep up the good work you two. There are lots of us thinking of you.
Yvonne and Ross
Thursday, March 3, 2005
Thursday, it's better day :-)
I'm just hanging out... reading all about Randy Moss and how happy he is now ;-)
Rox
Thursday, March 3, 2005
Thirsty Thursday - Home again
Friday's right around the corner....
Roxane
Yvonne and Ross
Sorry to hear you're not feeling well today. Lisa and I are very proud of you and keeping you in our prayers.
My dad is usually the one who's got his hands around people's necks, so if you had yours around his, you're tough enough to get through this:)
Love Seth & Lisa
PS: If you need any movie suggestions, let me know. I've got a pretty long Netflix list myself.
Friday, March 4, 2005
Friday - a.m. update
We expect to do the three liters of fluids today again, so probably out of here around 3-ish.
Looking forward to a quiet weekend.
Roxane
Friday, March 4, 2005
Week 4 done...the hard way...
SO....WEEK FOUR DONE!!!!!!!!!!!!!!!!!!!!
We will rest up for week 5 this weekend.
Thanks for all your thoughts and prayers.
Roxane & Scott
Saturday, March 5, 2005
Saturday
Not planning too much today, maybe try to take him out for lunch and a movie?? We'll see.
Roxane
Saturday, March 5, 2005
Saturday, good day off :-)
When we got our mail today we got notified of the two appointments used to show the results of treatment. A "CT" scan is set for April 11th, and Endoscopic Ultra Sound for the 15th. So the end of treatment is near for sure, send all thoughts and prayers for results to show we go forward with the surgery and recovery phase. We know you already do...thanks.
Roxane & Scott
Sunday, March 6, 2005
Sunny Sunday
Scott had a good day yesterday and so far is still sleeping this morning, so I'm guessing the new meds we started on Friday really helped with turning things around for him, he is eating & drinking well (though cautiously).
We expect to see the kids today, Ben & Jen & Toby are coming over, and Claire will be here a little later, she's visiting Kyle.
Getting all set for Monday, hoping we are ahead of the "game" this week. Eight more visits @ chemo & radiation, keeping our fingers crossed that nothing changes.
Have a good day everyone.
Roxane & Scott
So glad to hear that the new medicine is helping. Nice to hear that you had a nice time yesterday and hoping you have another good day with the kids. Sure is beautiful outside today, feels like spring.
Good luck next week with your treatments, wishing you the best.
Mom and Dad
Monday, March 7, 2005
Monday #5
Scott is still dehyrated today so perhaps an extra liter of fluids, they will check again before we are done with the usually Monday format. I expect it will be a longer day again.
We had a good weekend. Scott slept well last night, but always gets anxious for these Monday treatments...good news...only one more!!
Roxane
Sounds like you are feeling better and sleeping better for the most part, so that is wonderful news. I am glad that you had a date to see "Hitch"--I thought that it was pretty good and funny.
Boy, yesterday was so gorgeous--can't wait for that weather to stick around!
I took Danielle on her first highway drive--we drove up to Madison to visit my brother. She really liked going that fast--and found it much easier to drive on the highway than around home. So true, really--if there is not a lot of traffic on the highway.
Hope you 5th week goes by quickly and smoothly!
Love and prayers,
Bernie W.
Glad to hear things are going good, Only one more MONDAY!!
Dad and I went to see Be Cool it was really funny! Dad liked it also, The both of you will have to go see that one next. It will give you some laughs
It was really nice in the big town of Chippewa Sunday also. Cooper, Joshua & Nikki and I went for a walk with the boys(a.k.a the dogs) and went a seen Gramdma Hutton. Cooper loves it outside.
Can't wait until this snow is gone
Scott& Roxane take care
I love you!
Julie
Tuesday, March 8, 2005
Tuesday...home again
We just got home about 4 pm, three liters of fluids again today. Scott did not sleep well last night, we figure it could be the new meds. We met with Tanya, NP and she suggested a little change in the way we are taking the new drug, so we will try that. Radiation went well. So, Scott is tired today, a little worn out I think.
Off to the U tomorrow again, hopefully a restful night.
Roxane
ONLY 3 MORE DAYS LEFT FOR THIS WEEK--YEY!
HAVE A GOOD NIGHT'S REST AND BETTER DAY TOMORROW!
LOVE,
BERNIE W.
Yvonne and Ross
Wednesday, March 9, 2005
Wednesday update
Beautiful sunny day so far, but they are scaring us with perhaps some icy/snowy weather for tomorrows drive in :-(
We both slept well last night and ready to face the rest of the week.
One more week and this phase of treatment will be over :-)
Roxane
I have been out of town for a few days and just getting caught up on how things are going. Wow Scott, I bet you never thought someone would ever need to force fluids into you ;-) I am so glad they figured out how to do that. Glad to see the dates have been set for your testing to see how the process is working. We are praying for all positive results.....You are going to beat this thing.
Love ya,
Doc and Mary
Love,
Seth & Lisa
Love you, and I'm praying for you. Get these last laps in, and finish strong Scott, you could always finish strong, this'll be no different.
Jim
Thursday, March 10, 2005
Thursday!
We had a fine drive in today. We are expecting to get three more liters
of fluids again today. We expect to see Dr. Greeno today sometime also.
Radiation is done and went fine.
Love,
Roxie
Thursday, March 10, 2005
Thursday update
The good news is Scott is doing well today, he is getting 3 more liters of fluids again though, I think we will be out of here by 3 today. Drive in was good, just messy.
I hope everyone is watching American Idol, I am rooting for Anwar...but there are several good singers this year. Claire and I think the top three will be Anwar - Bo - Nadine. Agree or disagree???
Scott's brother Jim is posting from China...so now the blog has gone around the world :-)
Take Care...one more day - week 5 done!!
Roxane
Sonja & Allen
Yvonne and Ross
Glad to hear that you are sleeping better--after tomorrow--only one more week!
I hope that you have a great, restful weekend and that next week flys by.
I like Nadine best, I think, but I like Anwar too--not Bo. It is tough--I can't remember the names of the 2 that I was hoping would be out of it last night.
Lots of Love,
Bernie W.
Friday, March 11, 2005
Friday week # 5 - a little tense here today
His weight has dropped about 5 lbs this week, and his blood pressures are low and his pulse is high at times, so they feel his body is under going perhaps too much stress...the radiation RN said they "could" pull him off radiation Monday if he is not better...so we are in a slight panic.
Our RN today at infusion is trying to set up Scott getting his fluids this weekend in Hudson @ the clinic. So we hope we can do that and keep going next week to the finish line. Scott has to step up on the eating though, even though he is not hungry, but lately it does seem that Thursday's &- Friday's are low days for him, but we think the extra fulids on the weekend are a good idea, so we hope we can get things arranged.
I will keep you posted, he just got done eating a good lunch, so I hope he is turning around for the better as I type this. We expect a long day today, at least 3 liters of fluids.
Roxane
Friday, March 11, 2005
Friday - better now :-)
Dr. Greeno came by and he said they are not concerned any longer about his kidneys, he is changing a med. and taking an additional test to make sure all is well. They have arranged that we will get the additional fluids in Hudson this weekend. Dr. Greeno expects us to keep pushing thorough to Wednesday.
So we are glad, also his last blood pressure came up quite a bit, so that looks a lot better now too.
So we are expecting that Friday will end for the positive, we will be here about 2 more hours to receive all the fluids.
Thanks for sending all those "extra" thoughts....
Snowing here right now, lightly though.
Roxane
Long days are extremely tough, but 5 weeks in, it doesn't surprise me that you need fluids. I'm glad they're pushing you to complete the full program.
They're not going to be able to do what they're attempting to do without side effects, and I bet both of you'd love to choke someone right about now cuz that's the feeling when you, or the one you love is being put through this.
Keep looking for the pot of gold at the end of this not so beautiful rainbow, I know it's there.
Give eachother a hug from me, I love you.
Jim
Long days are extremely tough, but 5 weeks in, it doesn't surprise me that you need fluids. I'm glad they're pushing you to complete the full program.
They're not going to be able to do what they're attempting to do without side effects, and I bet both of you'd love to choke someone right about now cuz that's the feeling when you, or the one you love is being put through this.
Keep looking for the pot of gold at the end of this not so beautiful rainbow, I know it's there.
Give eachother a hug from me, I love you.
Jim
Saturday, March 12, 2005
Happy to be at home!!
We don't plan to do too much today just hang around home and rest up for the finish line on Wednesday !!!
:-)
Roxane & Scott
Sunday, March 13, 2005
Sunday - Lazy afternoon here.
Since about 11 a.m. Scott has been sleeping very well, I have been working on the 2004 tax returns, and now have them completed, that is a nice job to have done!!
I expect him to awake soon for a late lunch, he should feel a lot better now I think.
All set for Monday, the last BIG chemo day, I hope radiation is "nice" to us tomorrow ;-)
Hanging in..............Roxane
Hope things go well with you this week. We'll call later in the week.
Last Thurs. Pattie Kuehnast had a small surprise birthday party for Mike at B&B It was fun. Sat. Steve & Terry took Rose to lunch. They then went up to Jim's House-furnace problems. Had to get a furnace man in on the weekend. But it works good now They have heat! Went with Terry & Laurie for supper at Old Abes. Good food.
Hang in there for a few more days then you will start feeling better and start getting stronger. We'll have to have a big celebration for you and Roxie when you're feeling up to it. Love you both, Steve & Judy
LIKE THE BROTHERS SAY HANG ON AND GRIT YOUE TEETH THE END IS NEAR AND YOU CAN DO IT ..
MOM HAD SUPPER WITH ME AND KEITH AND HIS FAMILY LAST NIGHT SHE DID OK. SHE SENDS HER LOVE AND ALL HER PRAYERS YOU ARE ONE TOUGH LITTLE COOKIE SO TAKE THE LAST BITE OF THIS MED AND IT WILL GO DOWN REAL EASY . LOVE TO ALL SUE AND MOM
Monday, March 14, 2005
Monday #6 - the finish line in sight :-)
Actual chemo and radiation will end on Wednesday this week, with us coming up for only the fluids on Thursday and Friday. As the family pharmacist, I will start to "pull back" on several of Scott's meds, so hopefully he will get back to his old self and even gain back a few pounds in the process. Re-evaluation tests the week of April 11th...with results and phase II treatment plan the following week.
Thanks for all the thoughts and prayers and encouragement.
Roxane
Tuesday, March 15, 2005
Update of Tuesday update
Scott blood pressures are a little low today, so it looks like (maybe) only two liters of fluids, we will see.
Scott's so/so today, but his spirts are good.
Our recheck CT Scan has been moved back a week to April 18th, to allow the full 30 days "rest" after the last radiation treatment.
We are getting excited for tomorrow :-)
Roxane
UPDATE
We are home already!!! Scott just needed 2 liters of fluids today, we were on the road for home by 1:30!! He is tired today though, but he sees the finish line. Our nurse today told us to "plan on" coming back for a few more days to get blood pressures and fluids, perhaps til next Tuesday or so. That's ok news...no more chemo or radiation after tomorrow!!! The next step will be backing off on some of the meds he is taking for side effects from treatment, here's hoping that goes well. :-)
R
Yvonne and Ross
I know that I had said something about the Idols--I don't like Bo that much am rutting for Nadine (is that her name?--I think that it starts with a N)
I am so happy for both of you that you are so close to the finsih line. You have been an awesome team!! You deserve a god medal in my book!!
I suppose that you will actually miss seeing all of those doctors and nurses everyday--I know they will miss you guys!
Have a good day and rest of the week.
Scott I wish for you restful nights!!
Hugs and Kisses--
Bernie W.
"GO GO Scotty"
Now you add in the leg and arm movement from your cheerleadering days!!!
You are almost there BIG GUY!!Always wishing the best for you
Lots of love
Julie
I hope you get this message. Charlie sent one a while back and it didn't get posted...Anyway glad to hear that this phase of the treatment has been completed. Probably not half as glad as you are, Scott. Now you will be able to get a little rest and enjoy Easter and hopefully some warmer weather. Charlie is headed to Madison on Wednesday to the State Boys Basketball tournament and I am headed down on Friday. We will stay with Anne and Erik in Baraboo and yes, I will get to play with Isabelle. We only have a few more weeks to go and we will be Grandma and Grandpa again...May 8 is the target date. So we are getting excited. Charlie also has his 35th anniversary with Wausau Insurance tomorrow...he is really getting to be an old codger. He remembers that when he got the job two of the happiest people in the world were Ole and Norma. Well, hope this comes through
You are in our prayers always.
JoAnn
Love you as always
Mom and Dad
Wednesday, March 16, 2005
Get ready get set...we are about to go :-)
Radiation went well - 28 visits - done!!! We will see Dr. Lee again after the CT Scan on the 18th of April, she will probably give us results we hope.
So we are very happy today, coming back tomorrow for fluids and blood test. We will see about driving up on Friday...sounds like a snow storm is heading our way...
He did it!!!!!!!!!!!!!!!!
Roxane
YOU ARE THE TOUGH ONE AND PRAISE THE LORD FOR THAT, WE ALL KNEW YOU COULD DO IT NOW JUST ONE MORE TEST TO FIND OUT WHEN HE CAN REMOVE THAT TUMOR AND U ARE ON THE NEW ROAD TO RECOVERY GOD BLESS YOU AND
REMBER THAT I LOVE YOU VERY MUCH.
OH HAPPY ST PATRICKS DAY TO ALL
LOVE AND KISSES SUE AND MOM
Thursday, March 17, 2005
To the U and right back...
So a quick trip over and back, if Scott continues to eat and drink plenty of fluids, we won't be heading that way again until March 28th for a check up.
So you will probably not see posts coming across each day for a while, everyday we just expect Scott to feel a little bit better as he eases back from the treatment effects and effects from some of the meds.
I expect to head back to work next week, at least part-time if all goes as planned. So give Scott a call sometime, he's not really much of a talker right now, but that should improve each day also.
Thanks again for all your support you have given us through this first phase, feel free to e-mail. Our addresses are on column to the right.
Happy St. Patty's Day!!
O'Roxane & O'Scott
So much is now behind you!!
R & R --Eat, Sleep, Drink and be Merry are your doctor's orders now-so enjoy the rest of your "Vacation"!
Spring breaks are starting around here--hope that we get some Springlike weather!
It is Nadia, that I hope will win Idol!!
I am driving down to U of I to pick up Chad today-he has a week off. The next week, Derek and Danielle are off, so we are heading down to Florida for that week. We are really looking forward to sunshine and warmth !
Thinking of you always,
Bernie W.
Saturday, March 19, 2005
Weekend update
Thanks for cleaning off the driveway this a.m. Mark!! :-)
I took Scott for a short drive around town today, on some errands, that did not agree with him, I'm thinking it is because some of the nausea meds are done, and some are being cut back. He's ok now though, he had a small bowl of ice cream and is taking a nap.
We watched a movie last night High Crimes - with Ashley Judd & Morgan Freeman, it was good (2 1/2 *) and suspenseful, with a change up ending...so a good rent. I also watched Jo Lo's movie the other night "Shall We Dance" also starring Richard Gere, so ladies it is worth a watch ;-) - but if I never did see it I would be ok too (* 1/2). Perhaps we will watch "Ray" tonight...look for the review...
Have a good "rest" of the weekend.
Roxane
Love Seth & Lisa
You are both really living up to those vows--"for better or for worse, for richer or for poorer, in sickness and in health"--I think that they go something like that?!! You both must have had to lean on eachother for strength, at different times, to get through this! I bet your sense of humor and big smiles, that you both have, helped a lot!!
Ben, thank you for setting up this blog--it is incredible! It enables all of us to visit without intruding or disturbing Scotts rest.
Love to you all,
Bernie W.
Monday, March 21, 2005
Everything is coming along...
I just spoke with Scott's clinical nurse Judy. We spoke about how the weekend went, she said everything is normal that is going on. She expected after Wednesday the stomach issues would be much better. Let's hope so!!!!!!!
I plan to run some errands this a.m. and still planning on heading back to the bank (part-time) on Wednesday if all keeps progressing with Scott.
I see some of the "Old Scott" returning more each day, he told me this a.m. that he had a dream that he was eating a meal and having a BIG Diet Coke...he said it seemed so real, and it made him feel so good...I can hardly wait!!
Everyone have a good week. :-)
Roxane
I am so glad that you are starting to feel much better Scott! Wed. has passed, so I am hoping that you are closer to having that BIG Diet Coke!
It is hard to believe that it has been a week already since your last chemo-time flys!
Soon you will be feeling much better and the weather will be much better too, so that you can get out and enjoy it!
HAPPY EASTER to all of you,
Love-
Bernie W.
Friday, March 25, 2005
Happy Easter
Hope you are all gearing up for Easter, sounds like a good weekend. So far we haven't made any plans, Roxie is back to work as of Wednesday. I'm still having some food issues, but my doctor just changed up some pills on me. Feeling better everyday.
Have a Happy Easter Holiday,
Love Scott and Roxane
Monday, March 28, 2005
Monday appointment update
Regarding Scott's trouble with his stomach, Tanya, NP suspects that it is a problem with acid reflux, brought on by the radiation most likely, so she just increased a medication. All Scott's blood work looked good, considering he has just been off the chemo/radiation for 11 days.
I was happy to see another gentleman we saw daily while we were going thorough the same treatment for pancreatic cancer. He looked so much better, his wife said he has gained 16 pounds and his first tests show no sign of the tumor, (his tumor was in the opposite end (head), and he had surgery first,) he will soon start the 3rd phase of the additional chemo. I am guessing that the Doc's are watching these guys closely to see how they both fair with different routes of treatment. For sure Scott faired much better with the 5 1/2 weeks of treatment, this poor sole was in the wheelchair some days, and on intervenious feeding a few weeks to get through. He looks and feels "just great" he said.
We look forward to our re-check appointments on April 15th and on the 18th.
Scott seems better each and everyday.
Keep the thoughts and prayers coming.
Roxane & Scott
Friday, April 1, 2005
No Fooling...The healing has continued :-)
The snow piles have all melted here, and the sun is shining again today. Scott has been getting out a little more each day...yesterday he even drove to the grocery store by himself and picked up a few things. He is a little nervous about being out and about on his own, but building more confidence each day. The treatments sure knocked him for a loop, physically and emotionally, but he's coming bacccccccccccccck, more and more each day.
We are looking forward to the next phase of tests and thinking positively that things are in our favor.
Everyone have a great weekend, it looks like it will be a nice one here, highs in the 50's and sun shine.
Our family cannot express how much we appreciate all the kindness we have been shown though these past few months in so many ways, by so many...
Roxane
JUST A NOTE TO LET YOU KNOW THAT I AM STILL ALIVE AND WELL IN CADOTT WIS.MISS YOU AND HOPE TO SEE YOU ON THE 14 of MAY AT AMBERS COMING HOME PARTY. BUTIF NOT WE WILL SEE YOU SOME TINE REAL SOON
LOVE TO ALL MOM AND HER TYPEST.
YOUR LOVING SISTER xoxoxoxoxo...
Jon, Shannon, and Quinn
Glad to hear that your health is becoming stronger each day. There are some good things that happen when your body is really going through an ordeal. First you find out who your friends are for sure and you also realize how strong you can be when you have to cope with bad stuff.
Love and prayers to you both. Toots
It was great seeing you last week. You looked good. When you're ready for a road trip let me know. Roxy -I will be easy on him.
You Friend Always,
Bob
Wednesday, April 6, 2005
Midweek Update
Scott continues to feel better each day. His stomach issues are still a problem though. His RN, Judy told him that patience is a virtue, and he will need a lot of patience with his stomach. Judy did reduce his pain meds again, by another third. Scott's pain has been at "0" for a long time with the meds. It is thrilling for us that his pain remains at zero, especially since the drugs have been reduced, now by two-thirds.
I know you all have been watching American Idol each week. My favorite remains "Anwar" - yes, I know he needs to continue to step-up his weekly performances, it was a close call last week.
Scott's re-check appointments are getting closer each day...continue the good vibes you are all sending our way.
Love To All Near & Far
Roxane & Scott
Hope that your stomach starts adjusting more quickly!
I am into American Idol--and still pulling for Nadia--was glad to see that she was not in the lower 3 this week. I really expected that blonde guy who isn't wearing glasses anymore (can't remember his name right now) or Scott to be let go this week.
Danielle and I are into watching it weekly. She like Anwar best too.
Spring has Sprung down here in beautiful IL (ha ha).
We were bummed that the Illini didn't win that last game--Chad could not have cared less though. If he was into sports--maybe we would have gone to a couple games.
Those appointment dates are coming up fast--praying for wonderful results!!
Take good care of each other!
Love,
Bernie W.
We went to Platteville to a wedding over the weekend. Had a real fun trip. Saw a lot of wildlife along the Mississippi. Had a good time at the wedding.
We'll be watching you getting better in the neighborhood. Keep being positive.
Yvonne and Ross
Tuesday, April 12, 2005
Tuesday Update
We had a a busy weekend. We wore Scott out on Saturday at his Mom's old house with the cleaning out and getting ready for the home sale. He caught up with his rest by Monday a.m., and is back on track again.
We test on Friday, but do not think we will see results that day, Monday will be the big day, we see Dr. Greeno & Dr. Lee late that day. I will blog results Monday evening.
Keep the good thoughts heading our way. :-)
Roxane & Scott
It is great that you could help with your Mom's house--big job, I bet!
I hope that Fridays tests go well and that your meeting on Mon. gives you Wonderful results!
Thinking and praying for you--
Bernie W.
Friday, April 15, 2005
GOOD NEWS TODAY :-)
Dr. Mallery was our doctor again today, he did the original "scope" in December that confirmed the tumor and cancer. He was glad to see Scott, and happy that he went forward with this treatment. He let us know before the test that he did not think he would be able to tell the condition of the tumor (shrinkage/growth etc.) due the the scar tissue that would have formed due to the chemo/radiation treatment. What he would be looking for is the spreading of the cancer to distant organs (liver, etc.)
The procedure was less than one hour. Dr. Mallery spoke to us with his findings... HE SEES NO SPREADING OF THE CANCER....he was correct about not being able to tell the condition of the tumor, it looked much the same to him, but to keep in mind that could be due to scar tissue build-up. He also said that in his report to Dr. Greeno, and Dr. Sielaff , he will state that he did not find a reason to rule out the surgery, with us keeping in mind that the surgery is their call not his. He will note that he did biopsy two lymph nodes, but at first look they appear normal. He thinks due to the treatment they had a different appearance, so a biopsy was called for on those two, any other lymph nodes appeared normal that he could see.
So it has been a good day!!! We will enjoy the weekend even more now...the first test results are the best we could have hoped for!!
Keep'em coming :-)
Roxane & Scott
Emily
So happy to hear this good news!!!!
On such a beautiful day we couldn't have better news. You should be able to relax a little more to enjoy the weekend.
Love you,
Mom and Dad
Diane
EDNA
HAPPY HAPPY JOY JOY..
THIS IS THE BEST OF ALL NEWS THAT YOU COULD HAVE EVER SENT I
KNOW THAT ALL THE REST WILL BE JUST AS GOOD. HAVE A GREAT WEEKEND AND REMEMBER THAT I LOVE YOU BOTH..
MOM AND SISTER SUE
Remember that good things come in threes.
Couple more are due, and you know what everyone has got in mind for the next, and the next.
Love you.
Jim
Monday, April 18, 2005
Test results day - no surgery yet.
The CT scan looked clear also. So the cancer has not spread to distant organs. The tumor site though, looks much the same as the original tests. So that is a "good thing" - in that the tumor has not gotten larger - but a "bad thing" in that it has not shrunk enough for Dr. Sielaff to make the removal successful.
The next coarse of treatment would be to do another 6 week coarse of chemo 24/7 of the drug 5FU (only). After a two week rest they will evaluate again with the same two tests. So...Dr. Greeno said we should get started in the next two weeks with that...Scott said can we start today...Dr. Greeno said "Sure"!!
Yes - we are dissapointed not to go forward with the surgery immediately, but as Dr. Greeno said, we get "one shot" so let's make it our best. This second phase of chemo will give the tumor area a chance to heal more from the first phase and a extra kick of drugs to help with continued shrinkage and maintience of the tumor. This is a lighter treatment of the drugs, we are hopeful that side effects will be almost unnoticiable.
Scott has really come around in the last four weeks, so we are still sure that this treatment is working. He can enjoy the next few weeks and get even stronger each day.
We are doing fine, we just have to reset our sites.
Roxane & Scott
You have some postive news from your tests friday and today so we should be thankful for that. With a few more weeks of gaining your strength back you'll be in better shape to go through major surgery, which isn't going to be easy. Everything moves at a snail's pace when we are in a hurry to get rid of a problem. Glad to hear you got on the chemo thing right away today, might as well get going. You have some good doctors so we have to go along with what they say. Our prayer and thoughts are with you daily.
Love you,
Mom and Dad
So you are into the next phase--hopefully this one will be a bit easier and you can continue to gain back your strength!
It sounds like you guys have great doctors and have mapped out a good route--just taking a little side trip on your way to the "one shot"!!
Will this involve daily trips to the center again?
I hope that the next 6 weeks go by quicky and smoothly. I think that the beautiful Spring weather will help a lot with your spirit--it sure does with mine. You shouldn't have to drive through any snow storms either!
LIVESTRONG!!
Love,
Bernie W.
Tuesday, April 19, 2005
Tuesday - a better day
Judy answered a lot of questions we had and offered some advice and ideas about what to expect with this next round of chemo. She wanted us to remember that we did not get bad news, just a delay in the surgery date. We know that the staff at Masonic are on call for us at all times and later this afternoon we found that out for sure!!
We ran a few errands after we spoke with Judy, and ate lunch at Quizzno's today. Scott tried to rest for a few minutes, but couldn't fall asleep, so he got up and was putting on his sweatshirt shirt when I heard him say %*@#!! - then I heard a ripping noise (of tape, not skin) and sure enough...he accidental pulled his needle out of his chest that is attached to the chemo ball!!A quick call to the clinic, some instructions, and we were our way up to the U (this was about 3:15) we are back home now, all repaired. Scott wasn't in any pain so that was good too, he just felt foolish, he was assured that he was not the first patient to do this. Traffic was not even that bad up or back.
I am heading back to work tomorrow, I'm going to try to work more, excepting for our Monday afternoon appointments, hopefully no more quick trips ;-)
Thanks for all the thoughts and good wishes that everyone keeps sending our way!!!
Roxane & Scott
Ben, Jen & Claire
Iam sorry to hear that the surgery is off But am glad to hear that you are facing it with all the strength and courage that you have in you. We are all praying
extra hard that this will pass as fast as the last bought did ..
MOW ON A BRIGHTER NOTE YOUR MOTHER IS GOING TO WORK AT THE SENIOR CENTER ON WEDNESDAY..
SOUNDS GOOD YES????
WELL IT SOUNDS GOOD TO ME.
WELL BEST SIGN OF LOVE TO AL
hang in there SISTER SUE
Friday, April 22, 2005
Friday evening-Ordered calzones tonight!!!
Scott is getting adjusted to being on the chemo again, so far he is doing ok, we will head up to the U of MN on Monday to get the second weeks dose. Scott had a busy day today, he got some work done in our garage, and went over to help my sister Linda with a couple chores she had also. He mowed the front yard on Thursday, but now realizes that he has to take things a little slower, but he keeps pushing along. He is also enjoying reading again, and has made several visits to our local library.
Scott's re-check tests have been moved up about a week...June 10th for the EUS, with Dr. Mallery, he should tell us his findings. June 14th, the CT scan, we will see Dr. Greeno and see what the next phase will be. Dr. Sielaff's (surgeon) office called and wants to see us this coming Tuesday, we are guessing he wants to discuss the prior round of treatment with us.
We are planning on hanging around the homested tomorrow, and traveling to Jordan to see Ben & Jen on Sunday...Claire is visiting Kyle this weekend, he is healing up well from his surgery.
Take care and have a great weekend everyone!!
I'll keep you all posted...
Roxane
Monday, April 25, 2005
Week Two Chemo starts
Looking around the infusion room, Scott can see how far he has come along on his treatment, we are at a "easy" part right now. Scott spoke with Marie, Dr. Sielaff's RN today. They are canceling our visit tomorrow, they did not see Scott's results before they made the call last Friday. Dr. Sielaff agrees with another round of chemo and they will wait for the results in Mid-June.
So all is well, hopefully the needle stays in place...this week ;-)
Roxane
Saturday, April 30, 2005
April is Done
Just wanted to thank everyone for their postings, e-mails, cards and phone calls. Starting the third week of phase two on Monday, feeling good so far and I am able to eat almost anyting I want, Diet Coke still tastes funny though. Well were off to Wal-Mart, need some oil for my car, will write again soon.
Scott
WATCH THOSE CALZONES THEY HAVE A WAY OF CATCHING UP TO YOU IN MORE WAYS THAN ONE... REALLY I AM GLAD TO HEAR THAT YOU ARE DOING BETTER KEEP IT UP
LOVE YA SISTER SUE XOXOXOXO
Monday, May 2, 2005
Monday May 2nd
We had our appointment today and everything went well. Dr. Tanya Watson saw me and seemed pleased with my progress and lack of side effects with the new phase of chemo therapy. In and out in one and a half hour, lots better than every day of the week. We just had supper, I've moved up from a small sandwich to a half a sub, you know what's next. Write more later.
Scott
from your over-the-hill neighbors
Saturday, May 7, 2005
Weekend Update...
Busy day planned today, we are heading over to CF to have lunch with my parents and dinner with all the Hedrington's at Terry & Laurie's celebrating with our Mom's.
The kids are coming over tomorrow to visit -Ben & Jen are getting another puppy soon, Toby will have a little sister. Ben has posted pictures of Lily on the web site in the photos section if you want to take a peak. Claire went to EC this weekend to visit with Kyle. She brought a lot of work with her to do while Kyle is working, she has a busy month of May ahead of her. Claire will also be moving to a different apartment in RF in mid-June.
So all is well, just about at mid-point in this phase of treatment, and looking forward to the re-check tests in mid-June.
We appreciate all the kind words, thoughts and prayers that we receive each day.
Roxane
Monday, May 9, 2005
Week 4 - All looks good!!
We had a earlier appointment today in St. Paul with the RR Retirement Board, that went well, and we even had all our paper work in order, so the process for disability has started, we will see what they rule. Since things went so smooth with the RR we were actually early for the clinic, but as usual they are very willing to get you in and out and on your way home.
Scott is feeling well, just a little tired...but we are on the downward slope with the treatment now, the finish line date is May 31st!!
Roxane
Monday, May 16, 2005
Week Five - and so it goes...
Sunday, after a late wake up, Scott went out in the garage for some cleaning up and putting away of things that have piled up, can you believe it...Christmas decorations were still sitting around!! I was doing inside cleaning, with an occasionally call for "help" from the garage. We took a lunch break to Quizzno's in Hudson. Then lo and behold, the sun decided to shine for a little while, so that meant we needed to get the lawn and bushes trimmed up between the expected rain again this week. So, all looks pretty good around 1841 Wisconsin Street, only a "few" cross words to each other regarding the fine art of shrub trimming!!
Off to the clinic today, yes it started to rain...wasn't suppose to until tomorrow...oh well. Things were good with Scott's "numbers" again, on goes the new "ball" and off we head for home (in the pouring rain & heavy traffic). One more "refuel", and hopefully he will be ready for surgery?? The clinic is wanting to re-schedule Scott's EUS from June 10th to June 3rd...we asked them to check with Dr. Greeno regarding the early date, the "plan" said two weeks rest then retest, so we don't really know for sure about that test date yet, the CT Scan for the 14th looks secure...but who knows, change is good right??
So we are hanging in there and getting out and around a lot more...hey we just had Tacos for supper...first time since November...let's see how this works!!! :-)
And, as always...thanks, thank you, thank you very much... for all the love and support we receive each and everday from all of you.
Roxane & Scott
It was so good to see you again this weekend. Uncle Scott you look great! You too Aunt Roxi!!
Are you coming to town again next weekend?? :)
So glad to hear and see that things are looking up.
See you soon...hopefully it will be sunny this time.
Lots of Love,
Tara, Jason, & Owen
Best of luck in the coming tests. I will see you soon. Toots
Glad to hear you were able to get out and visit. And working together in the yard; that was something I am sure you were both waiting for ;-)
We think of you often and pray for the best.
Love Ya.
Doc and Mary
Thursday, May 19, 2005
It's a go - June 3rd - first re-test date!!
Keep the positive vibes heading Scott's way, he is really doing great with this round of treatment!!
Roxane
As always our thoughts and prayers are with you and the family. You should here John for our supper prayer, if by chance we don't chime in right away, John always says "prayer for Uncle Scott!" it is so cute!!
Take care,
Mike, Susan and John - Hartford, WI
PS Do you know when the warm weather is supposed to come - I'm waiting !! Susan!
Monday, May 23, 2005
Finish line in sight....
A beautiful sunny day to enjoy a nice ride up and back!!
We had a message on the phone when we got home regarding the upcoming EUS on the 3rd...we left them a message and now are wondering what is up...so we will have to wait until tomorrow, no call back yet.
Have a good week everyone....long weekend coming up!!!
Roxane
Tuesday, May 24, 2005
Welcome Scruffy???
Regarding Scott's appointment on the 3rd for the EUS, he has just been moved back to 9:30 a.m., we are still to check in by 7:30 that day, so we are glad it was just a time change, we will still see Dr. Mallery.
Sounds like it will be a busy weekend for us, besides Scruffy becoming a family member, we plan to go to CF on Saturday for a visit, Sunday we are expecting visitors from Florida, Rod and Ray are driving up for a weeks vacation, and Monday we will celebrate Kelsey's high school graduation!!! Tuesday a.m. we are heading up to the U to get Scott's chemo ball removed and he will be free of attachments for a while...oh happy day that will be :-) :-)
Everyone have a Great Memorial Day weekend!!
Roxane & Scott
P.S. I am thinking of changing Scruffy's name to Reggie...but we will have to see him first ;-)
Tuesday, May 31, 2005
Free at last :-)
We went up to the U this a.m. and Scott was removed from his chemo ball...no more attachments!!!
We then went out for lunch and sat in the beautiful sunshine for a bit. Scott worked around the yard this afternoon for a while weeding and spreading some bark around. I took Scruffy for a hair cut, he looks very different now, and a lot more comfortable for summer weather I'm sure.
Next appointment on Friday @ 7:30 - procedure @ 9 a.m. First recheck, hoping for good news!!
Keep the good thoughts coming :-)
Roxane
Good choice getting a trained dog. Speaking from experience puppies can really be a pain. Have been meaning to stop in and see you. However, Julie has kept me more than busy getting ready for Jennifer's graduation. I have heard all of the horror stories about mothers and the preparation prior to graduation but dismissed the comments and advice. I now have first hand experience of a graduation mother and juist how crazy they can get. She even had me pressure washing the outside of the house in the rain. Glad it is over.
Keep posting these positive results and good news. Were all pulling for you.
Dennis Behnke
We are off on the bike today to upstate New York via Mackinac Bridge and Niagara Falls. I quit taking my diauretics- hope that will keep me out of the bathroom better. Can't forget Roxie's comment after you guys were there. All that running water....
We will be thinking of you today, as always!
Our love to all!!!!!
Susan and Bob Rada
Friday, June 3, 2005
Good Luck Dad!
Everyone have a great day! We will post results as soon as we can!
Love to everyone,
Claire
UPDATE!!!!
I just talked to my mom and the test results were similar to last time. There are a few spots that were biopsied, but other than that, NO SPREADING! The doctors will all talk now, and hopefully a plan will be in effect in the coming weeks! What a STRONG guy, huh?
I will let my mom give a full rundown when she gets a chance!
Friday, June 3, 2005
EUS results
Next appointment is with Dr. Greeno on June 14th, earlier that same day Scott will have a CT scan.
We are hoping for "all clear" on the biopsy and a push on toward surgery.
We are not planning too much for this weekend, Scott is resting now, I think they gave him a little extra sleepy time drug this time around.
Scott & Steve are planning a fishing trip next week at Steve and Judy's place, wish for good weather and biting fish!!
Have a good weekend everyone!!
Roxane
Saturday, June 11, 2005
The fisherman is back...the move is on
While Scott was gone, Claire and I (& Scruffy) were getting ready for the move. We were doing a little packing and cleaning. Today we hope to complete the move, we got some more muscles now. Kyle is here to help, and Ben & Jen are coming over and Linda said she can do some hauling too!! The move is only about a block from where Claire lives . If we move between the rain drops it will be great!
We also get to meet Lily today. Ben & Jen and Toby welcomed little Lily to the family this week. Toby is excepting his little furry new sister to the family just fine. Toby and Scruffy met last weekend, they got along fine, but it is interesting how dogs really do have personalities.
Of coarse we are anxious for our visit to the clinic on Tuesday, We are happy to be a little "extra" busy this weekend. I will post the results as soon as I am able, but we do not see Dr. Greeno until 2:30 that day. We will get all the test results and form the next step for our plan. Scott is feeling great though, we thinks he added a few more pounds due to Steve's feeding him very well on the fishing trip!!
Have a good weekend everyone, send all your positive thoughts our way :-)
Lots of love and good wishes!
Roxane
PS. WE HAD A MAJOR BUY OUT AT THE STORE THAT I WORK AT IT WILL NOW BE A GORDY,s COUNTRY MARKET AS OF JUNE 26TH. WELL I HAVE A INTERVIEW ON THE 14th AT 9;30 AM WISH ME LUCK LOVE TO ALL
It is always nice to get away from home once in a while.
For a minute I thought that you meant that you (Roxie and Scott) were moving--but then figured out that it is Claire that you were moving!
Hope that that went all fine.
Guess that you guys are getting a lot of rain up there--we are VERY LACKING in rainfall! Send some down this way!!
I hope that the Dr. delivers great news today!!
I am enjoying the relaxed schedule of summer these days!
Take good care-
Bernie W.
Tuesday, June 14, 2005
Today's appts. went well :-)
We are happy with the results today, and will keep you posted as we know more.
Thanks for all your good thoughts and well wishes!!!!!! :-)
Roxane & Scott
Friday, June 17, 2005
His wish comes true!!!
Monday, June 20, 2005
Surgery Date set...
The surgery date is Monday, July 11th, 8 a.m. @ Abbott Northwestern Hospital, Minneapolis, MN. The surgery was not scheduled sooner due to Dr. Sielaff having a scheduled vacation and he did not want to do the surgery, and then be unavailable, we like the idea of the vacationed, rested and relaxed surgeon :-)
We expect Scott to be in the hospital 5-7 days following the surgery, and it is expected to take about 4 hours. Dr. Sielaff is an excellent surgeon; his parting words were...take care of yourself and let's get to work!
We will keep busy for these next several days, Scott is feeling very well and getting a great tan, he plans to get a some fishing and visiting in before he lays low for a few weeks post-surgery.
Keep the good thoughts heading our way!!
Roxane & Scott
Sunday, June 26, 2005
Hi - things are working again
Just a couple comments this evening...
Scott has been asked to participate in a "study" that Dr. Sielaff is doing regarding pancreas cancer. All Scott needs to do is give up his tumor, and some blood, he figures he won't need the tumor, and has plenty of blood to share, and that he will be "rechecked" every six months. We don't know much more then that right now regarding this study, the papers are in the mail for Scott to read and sign. We do know the more they can learn about this disease the more able they may be to help others, and we are all for that!!
We drove up to Minong to visit with Steve & Judy on Saturday, it was a great day, perfect weather and great food too, not much luck on the fishing though.
Scott is heading up to the clinic @ the U tomorrow (all by himself) to get a blood test, they are just keeping "tabs" on him while we wait for the surgery date.
Take care everyone and have a great week!!
Roxane
Great news on the upcoming surgery. I have been on the road and out of touch for a couple of weeks so it was great to see the progress you've made with your treatments and pending surgery. As you know our prayers, best wishes, and love are always with you. Hang in there buddy.
All our love
Bob & Susan
P.S. When did you become a fisherman? Didn't know you had the patience. Just kidding!
We may be driving through the RF area after the 4th, so may try to call and see if you are up to a short visit.
Have a good week and 4th weekend!
Summer is FLYING by!
Keep cool!
Love,
Bernie W.
JUST A NOTE TO TELL YOU ALL IS WELL AND THAT I AM PRAYING FOR YOU AND KNOW ALL WIL GO WELL .
GLAD TO HEAE THAT YOU ARE GOING TO DONATE THAT TUMOR FOR A GOOD CAUSE. HOPE THAT IT WILL BRING THEM TO A CLOSER CURE AND BETTER TREATMENT. NICE JOB LITTLE BROTHER LOVE TO ALL SISTER SUE
JUST FINISHED TALKING WITH YOUR MOTHER AND SHE SOUNDS GOOD AND KEEPING BUSY. SHE TOLD ME ABOUT THE JULY 11th. SURGERY AND WILL HAVE MY CANDLE AND PRAYERS GOING FOR YOU. WILL BE CHECKING IN WITH THE UP DATES ON THE PROGRESS AND DETAILS OF HOW YOUR DOING.
TINA AND ROBBY SEND THEIR LOVE AND BEST WISHES.
LOVE YOU MUCH
JUANITA from Milpitas, Ca.
P.S. Iam sure your Unc.Denny will be watching over you for it would have been his birthday.
Friday, July 1, 2005
Surgery Moved Up
Hi Everyone,
I just got a call from Dr. Sielaff's nurse Marie, due to another patient being in the hospital, they would like to move my operation up to Thursday July 7th, and I agreed to this move. Roxie and I have to be there at 5:45 am and the surgery will be at 7:30 am. I know this seems to be fast and furious, but I am very confident that this is the way it is supposed to be. Keep those good wishes coming at me.
Scott
Saturday, July 2, 2005
On the road again...
Scott & I (& Scruffy)will be doing a lot of traveling and visiting this weekend.
We are heading up to Lake Holcombe today to visit with Claire & Kyle and the Roder family. We will do some relaxing in the sun, boating, and have a cookout, Scott's bringing along his fishing pole too!! Saturday evening we will head back to CF and spend the night with Jim. Sunday we plan to have a get together for lunch with family in town. Later that afternoon off to Chetek to visit and have some supper with my parents. Back to RF that evening, but Monday...to Jordan we will head to visit with Ben & Jen, Toby & Lily. We should have a great weekend, we hope yours will be the same!!
I plan to work on Tuesday, but then will start some time off. Jim & Sandy Sullivan will be caring for Scruffy during Scott's hospital visit while I am away from home, Scruf should have a great time with their dog Jesse.
So things are all of a sudden moving along at a fast pace. I will certainly keep the blog updated with Scott progress, I am sure that a computer is available at the hospital for patient & family use, let's hope it is working ;-)
As we think of all our family and friends that have helped us along this far we can only think of how lucky we are to know such wonderful people....keep all those positive thoughts and prayers heading this way!!!
All our love,
Scott & Roxane
Enjoy your 4th of July weekend. I miss those times "up north." We tend to stay put during holiday weekends since everyone else leaves town. On Monday, we'll watch the D.C. fireworks from a friend's boat on the Potomac -- a good time, but not as magical as Northern Wisconsin.
Your strength and courage throughout this ordeal has been amazing, Scott. We'll be thinking about you this week and praying that the surgery goes well. Stay strong and keep the faith! Best wishes for a fast and full recovery.
Jean & Mike Adair
Tuesday, July 5, 2005
Our Plans...
Tomorrow we plan to get things taken care of around the house, pack our bags deliver Scruffy and head to Abbott late Wednesday afternoon. We have a reservation at the Wasey Center on campus @ the hospital, we are not assured a room, it is first come first serve, but at least they did sound hopeful that one would be available.
Scott went today for his pre-op with his primary care doctor, Dr. McCann in Hudson. Scott's in great shape, Dr. McCann said. He was please with the timely reports that Drs. Greeno and Sielaff have sent his way.
We are to be at the hospital at 5:45 a.m. on Thursday and surgery is scheduled for 7:30 a.m. - Dr. Sielaff expects a 4 hr procedure. We will get info posted asap, please hold Scott and the medical team in your thoughts and prayers...
Thanks so much for your love and support, and thanks also to all the doctors, nurses, staff, caregivers, and radiologists, that have seen us though this far, we are hoping for great things!!
Roxane & Scott
You will do great. You have a great team of doctors and you definately have a great cheerleading squad! :)
We love you...
Tara, Jason, and Owen
Thursday, July 7, 2005
Surgery Update 9:43 a.m.
Scott went into surgery @ 7:30 right on time, he is in good spirts and in good hands.
I will update again as we learn more.
Roxane
Ben, Jen, Claire, my mother, and sister Julie are all here with me today.
Thursday, July 7, 2005
Thursday, July 7, 2005
Thursday, July 7, 2005
Surgery Completed!! :-)
Spleen was removed, 60% of the pancreas, "chunk" of stomach (really that's how he said it).
We took a short break outside and will expect to see Scott soon, he is currently in recovery.
We expected great things and I think we got what we wanted!!
Roxane
JOANN & Charlie
JOANN & Charlie
Thursday, July 7, 2005
1st Evening update
Dr. Sielaff stopped in for a short visit, he has 3 patients in this unit, in fact remember #2 guy from treatment at the U, well he's Scott's roomate!!! His name is Tom and he had his surgery yesterday.
Some info regarding Scott....he is @ Abbott Northwestern Hospital - Station 40 (4th floor) room 4058-2 His direct dial line is 612-863-2426. I don't think I am suppose to have my cell phone on up here in the treatment area, so if you call me I may need to call you back.
I am heading over to my room for the evening, it's been a long day, but a good one too.
He needs some rest for sure, and is on pain meds, Tom tells us tomorrow might not be much better, and don't cough!!
More tomorrow...Roxane
Friday, July 8, 2005
Friday 8 a.m. update
Dr. Sielaff was in already this a.m., and told Scott he could get the results of the biopsies as early as today, but more than likely will see them on Monday.
Things look good here, keep the thoughts and prayers heading this way, we appreciate them :-)
Roxane
We sure have been thinking of you two here at the bank--the float people finished up the float last night--we even had a beer for you and Scott--some had more than one:>)
Your both in our thoughts and prayers
Your partner
Bernie
It was wonderful news yesterday and Bernie and I will have one at the parade tonight.
Mary OOOOOOO
Glad to see your recovery is going well and everything is looking good.Looks like all of the prayer's are working.
Jack
Hip Hip Hooray! It sounds like Scott did great. I bet Scruffy misses his buddy, maybe they will let him come in for a visit. Take care and hope to see you soon.
Janet
Hang tuff bud. I wish you and your family all my best. If you guys need anything, anything at all please let me know....
Nathan Rada
You have wonderful doctor's, nurse's medicines and care, but I also think that a strong positive mental attitude can create just as many miracles as any wonder drug. You two deserve the way this is working out. This has been one looonngggg road (and I know it's not over yet) but you're on the right path. Everyone is so proud of you. You're an inspiration of hope and love and strength. Keep on, keepin on. Love you both! Linda
Friday, July 8, 2005
Friday evening
Scott is doing well this evening, I left him watching the TNT mini series "Into the West", it is a very good program if you haven't seen it yet, they replay this episode Saturday and Sunday also, we figure if Scott watches it all three nights he will have seen it all, he dozes off quite a bit.
We thought Scott would be moved to a private room this evening, but none were available, perhaps tomorrow. His phone number will change then I will post the new number when that happens.
Have a good weekend everyone, we got a lot of rain here tonight in RF...the RF Days parade was rained out I am guessing.
Roxane/Claire/Scruf
Saturday, July 9, 2005
Saturday....GOOD NEWS!!!! :-) :-)
Scott is very tired today, he's not really getting enough rest, or "restful" rest anyway. He has been for several walks, but still has tubes in about everywhere, as his digestion systems awakes tubes and drains will be removed, he's not complaining though.
Keep the good vibes heading our way!!!
Roxane
Sunday, July 10, 2005
Sunday evening update
He is feeling well and a lot stronger he has went on approx. 12 "laps" today around Station 40, his RN Michelle said she wishes all her patients would be so mobile. He was running a temp. tonight, but I just spoke with Scott again and it is already going down, he is tired and needs some sleep, I left the hospital today @ 5 just so he could get a nap in, he didn't call me until 7, so he had a good rest that time. So he's hoping to get to sleep for the night soon, but is waiting for the nurse to "refuel" his IV before he's off to dreamland.
So things are moving along well for Scott, I plan to head up to see him after the "high" traffic time tomorrow.
Roxane
Monday, July 11, 2005
Monday morning news :-)
Things are looking good!! :-)
Roxane
Bernie's Assistant,
Michele
Glad to hear that things are turning out. It has been a long tough road. But Charlie says those Packer fans are a tough bunch. Sounds like Scott played offense and defense on this one. You are in our thoughts and prayers.
JoAnn and Charlie
Monday, July 11, 2005
He's coming home :-)
Everything is "moving" and Scott gets to have some dinner tonight. One of his favorite meals, baked chicken and mashed potatoes.
All the remaining tubes and drains will be removed tomorrow, and the only pain med is tylenol. Scott is doing great and anxious to see his meal tonight, sleep in his own bed, and see Scruf tomorrow!!
Roxane
Yvonne and Ross
Tuesday, July 12, 2005
Coming Home!!!
Tuesday, July 12, 2005
All settled in...
Scott is so happy to be home, our neighbor boy Josh and his Mom Linda made some "Welcome Home" signs, of coarse with Green & Gold streamers!!
Scruffy was happy to see him, and at the moment Scruf is sitting on Scott's lap in the recliner and they are both about to take a nap.
So all is well here.
Thanks for all the cards, and calls, e-mail and well wishes!!
Roxane & Scott
Wednesday, July 13, 2005
Wednesday update
Another very HOT day here again in WI...89.3 on my temp. gauge.
All is going well.
Roxane
Glad to hear that you are feeling better. Great news that they got all the tumor. Time heals all.
Gene and Jackie LaTour
Thursday, July 14, 2005
Thursday evening update
Scott is having some issues with his stomach though, we will call the Dr. in the a.m., we are wondering if it has to do with milk products (darn ice cream cone). He did have a good rest when we got home though, about 2 hours.
So all is going well, healing is happening!!
Roxane
Friday, July 15, 2005
Friday, another good day! :-)
I took Scott on an outing to the bank today to show him off, and a short trip to Shopko to get him a couple new shirts, he thought it would be a good idea to walk a around a little in a air conditioned place. Another hot one in RF today, looks like it will be that way for a while longer.
Have a good weekend everyone!!
Roxane
Sunday, July 17, 2005
Sunday morning update
Scott is healing fine, just slower than he wants too. He looks forward to the 25th when the (19) staples will be removed (ouch)!
Roxane
Glad to see your recovery is well underway and you are feeling better and getting out a little bit.
I got a email from Mike smith out in California and he was asking about you and how you were doing.I sent him your webb sight so you should be hearing from him.
Stop in when you are up this way again as there are still more fish to be caught off my dock.
Jack
Monday, July 18, 2005
Surprise...No more staples :-)
We thanked him again for his work, he said it was a pleasure and thanked us. Dr. Sielaff signed Scott's work release for "back to work" on August 16th....just one catch...we see Dr. Greeno August 15th...we are thinking one more round of chemo first...but look out RR guys....he might be coming back quicker than originally we thought!!!
So it has been another GREAT DAY!!!
Roxane
Great news that your staples are out and your recovering well. I was in Minnesota last week and Jim Kastner told me of your status and Jack Johnson sent me the Hedrington home page to keep track of your status. Hang in there Scott, looking forward to future updates.
Monday, July 18, 2005
MORE GOOD NEWS!!!!
Derek, Danielle and I were on a 2 week vacation in northern WI and the Cities. We had a great time--but, boy, was it ever hot!!
Now we are back home and I am just getting caught up on the computer.
I can't tell you how happy I was to read all of the updates on Scott!
It sounds like things are working out just beautifully--no one deserves that more than you two!
Now you are set to enjoy the next stage of your lives--
GRANDPARENTHOOD!!
Congrats on all of the good news!!
Will try to keep in better touch-
Love,
Bernie W.
Sounds like you two are doing great!
You are getting quite a few new additions to the family.
I here it is getting hot again, take care.
Janet
Wednesday, July 20, 2005
Things are coming along...
I'm heading back to the office tomorrow, Scruffy will be in charge of Scott for a couple days.
Thanks for the cards, email and encouragement, we are always surprised by how many people tell us they read the blog!!
Take Care all.
Roxane
Thursday, July 21, 2005
Thank God for health care professionals!!!
He called into his RN, Marie, she suggested a visit to Dr. McCann (she must have called Dr. Sielaff also). In the mean time Scott called the clinic in Hudson to see if we could see Dr. McCann, we got a appointment for 6:50 p.m. Then - Dr. Sielaff called Scott, asked some questions, was glad to hear that we had a appointment, and said he would call Dr. McCann. We are directed by Dr. McCann's RN to go to Emergency in Hudson, and they would run the test we needed done there, so about 6 p.m. that's where we were. Scott was cared for by a excellent staff, tests were ran, and what they found out (by x-ray) there is fluid in one of his lungs, normally this will just go away, the Dr. said he had the EKG of a 20 year old!! They decided they were not going to do a CT for blood clots since there were no other indicators to warrant the test. We were sent home with orders to see Dr. Sielaff (he was called with test results while we were still at the ER) next week. When we got home (8:00) Marie called again to confirm with Scott that we would see Dr. Sielaff on Monday.
We are constantly amazed by the quality of care and caring people we have dealt with though this whole ordeal. We know that we are receiving the best care from the best people, and are so thankful for it.
It's been a busy day! - Roxane
Saturday, July 23, 2005
Saturday - lights out!
Tomorrow Ben & Jen and Toby & Lily are heading this way for a visit.
Scott is coming along, he feels a little better each day but still has a way to go yet. We see Dr. Sielaff on Monday @ 1 p.m.
Take care all.
Roxane
Monday, July 25, 2005
Looking good...
We will go see Scott's primary care physician on Wednesday for follow up on some tests that were given at the ER last week.
So all looks good, and according to plan, just more rest and recovery time is needed.
Roxane
What a team you two are!!
Skinny huh? Suppose that you wouldn't recommend that weight loss technique to a friend though!!
It is just as well that you had to spend most of this summer in an air conditioned house or hospital. Now, hopefully we will have a beautiful Fall(my favorite season) and you will have enough of your strength back in time to get out and enjoy some of that!!
Take Good Care-
Love,
Bernie W.
What a team you two are!!
Skinny huh? Suppose that you wouldn't recommend that weight loss technique to a friend though!!
It is just as well that you had to spend most of this summer in an air conditioned house or hospital. Now, hopefully we will have a beautiful Fall(my favorite season) and you will have enough of your strength back in time to get out and enjoy some of that!!
Take Good Care-
Love,
Bernie W.
Wednesday, July 27, 2005
Sunday, July 31, 2005
Weekend Update
We went over to see the Kansas City Chiefs practice yesterday, they sure have a fan following, they all think it is great weather here with temps in the high 80's, one fan said it was 100+ there for the last two weeks. Scott is also getting "in gear" for his fantasy football league, as usual it takes hours of planning and thought, he REALLY enjoys it.
My parents, Julie & Linda came over today to have lunch, it's my Mother's 70th birthday! Many, many more Mom!!
Have a great week everyone!!
Roxane
Friday, August 5, 2005
One Month update...
We look forward to our next visit and CT scan on the 15th at the Uof M with Dr. Greeno. This scan will be the "new" baseline scan since the surgery. We will also find out about the next phase of chemo.
Keep your healing thoughts and prayers heading Scott's way.
Have a great weekend everyone, I am going to see the "American Idols" in concert with Claire & Jen this weekend...yes I know, I am way into this!! :-)
Take care - Roxane
Say Rox isn't there a "age limit"
to get into the American Idol Concert?
???????
Take care....love, cousin Kris
Wow--one month anniversary already--time sure flies!!
Sounds like things are going very well!!
We just got back from a week in WI--I had a great time with family while Derek and Danielle were in the Boundary Waters with John's sister and husband. Very hot week, both places!!
Got home to very dry plants outside--not a drop of rain again--unbelievably dry weather down here in IL!!
Just a shame, especially for the farmers!
THANK GOODNESS FOR A/C-HUH!!
Continue your great progress--hope that you find lots of good, satifying foods!!
Rox, I bet that the American Idol show was very good--sounds like a very fun time!!
Who was your favorite at the concert?
Lots of Love to you both,
Bernie W.
Tuesday, August 9, 2005
Turning the corner??
Keep the thoughts heading our way :-)
Roxane
Monday, August 15, 2005
Test Day plans
Scott is continuing to feel better each day, yesterday he even ate a Taco!!!
Look for the posting later today!!
Thanks for all your thoughts and prayers.
Roxane & Scott
Monday, August 15, 2005
Chemo starts again...
Chemo will start again next Thursday, and all that Scott will have to do is get a shot each week (for 6 weeks) and blood work. This will be the last round of chemo, he will follow up with another CT scan the end of October.
Dr. Greeno said he was very happy with the surgery results and that is the best outcome that we could expect, treatment is working!!
Roxane & Scott
Take care. Love, cousin Kris
Bet that that home 'therapy' is really helping (laundry, mowing,,,).
Keep up the great job of recovery.
I hope that you can get out and enjoy the Fall weather soon. I think that we are finally getting close to the end of this HOT stuff!!
Love to you all,
Bernie W.
Thursday, August 18, 2005
CT results are GOOD!!
We will start the third phase of chemo next Thursday - one shot a week for the next six weeks. Next recheck October 25th.
We are happy!! :-)
Roxane & Scott
Thursday, August 25, 2005
Round #3 begins...
We spent about 1 1/2 hrs at the clinic, Scott got his blood work done, and we waited for results (they were good) so treatment was started. Treatment will consist of a small IV "bag" of zofran, a drug that helps with side effects from the chemo drug which took about 25 minutes to run in, after that was done our RN Mary gave Scott a shot of the 5fu in the IV tube. The blood draw and drugs will all be done through the port they put in Scott's chest last January, the port has really saved Scott a lot of needle picks and pokes.
So for the next five weeks we will make the drive up to the U again, traffic was really heavy today when we hit the road for home @ 3:30, we got home about 5, so almost double the time it took to get up there.
We have a busy weekend planned, Ben & Jen are coming over on Saturday to celebrate Scott's (54th) birthday with us. Sunday is "Draft Day" for Scott's Fantasy Football League, Scott as "commish" is having all the guys over here...so there will be a lot of "BS" going on ;-) Later that afternoon Claire will be heading back this way from EC to have birthday supper with us.
Thanks for your calls, emails, notes, thoughts and prayers, we really appreciate your support and good wishes!!
Roxane & Scott
Friday, September 2, 2005
Week Two...done!
We don't have a lot planned over the long weekend coming up, just around the house work I would like to get done.
I cannot believe the summer is almost over!!
Take Care -
Roxane
Enjoy your nice, long, quiet weekend. We thought about coming up to WI-but I just hate the traffic coming back home on weekends like this.
Chad came home for the weekend though, so that will be nice. I'd like to get down to Chicago to see the "Bean" again!
It is hard to believe that summer is over already, but I am so ready for my favorite season!
Have a great weekend and week!!
Love,
Bernie W.
Thursday, September 8, 2005
Week 3 Progress
So treatment is coming along...on the downhill now!! This past week Scott has felt better than the week before, like I stated before, he was spunking today...and hurray...Football season starts tonight!!
Roxane
Just keeping in touch. Are you going to make it to the Emerson wedding next week in Iowa? You know that they are few and far between! We are happy that Tony is getting married, but also sad that the newlyweds will be moving to Cour 'd'alene, Idaho. Jess starts her new job there the first part of October. Hope to see you all next weekend.
JoAnn
It has been a while since I even checked this blog--guess that I am confident that all is well and the road is smoother!
The U has almost become your second home --so I bet that the people there have become like family. Glad that you got to see Judy, you have mentioned her much--so she must have been special!
It is so thrilling that you are feeling so good.
So--football season has started--enjoy!
Haven't heard about any movies from you lately? We rented cellular lately--it was good. It is kind of old, has probably been out on tape for quite a while--so maybe you already have seen it.
It is still so hot down here--hope that it is cooler up by you guys.
Happy Fall-
Love,
Bernie W.
It has been a while since I even checked this blog--guess that I am confident that all is well and the road is smoother!
The U has almost become your second home --so I bet that the people there have become like family. Glad that you got to see Judy, you have mentioned her much--so she must have been special!
It is so thrilling that you are feeling so good.
So--football season has started--enjoy!
Haven't heard about any movies from you lately? We rented cellular lately--it was good. It is kind of old, has probably been out on tape for quite a while--so maybe you already have seen it.
It is still so hot down here--hope that it is cooler up by you guys.
Happy Fall-
Love,
Bernie W.
It has been a while since I even checked this blog--guess that I am confident that all is well and the road is smoother!
The U has almost become your second home --so I bet that the people there have become like family. Glad that you got to see Judy, you have mentioned her much--so she must have been special!
It is so thrilling that you are feeling so good.
So--football season has started--enjoy!
Haven't heard about any movies from you lately? We rented cellular lately--it was good. It is kind of old, has probably been out on tape for quite a while--so maybe you already have seen it.
It is still so hot down here--hope that it is cooler up by you guys.
Happy Fall-
Love,
Bernie W.
Thursday, September 15, 2005
Week 4 - ready to vacation :-)
We have a BIG week of plans coming up, we are heading to Iowa for a family wedding, my Uncle Charlie's son Tony is getting married in Le Mars. Sunday we are off to the Black Hills for a couple days, returning in time for the next appointment on the 22nd.
All you RR bloggers out there, we ran into Terry Zilge today again, he seems to be coming along well on this treatment plan also, a heck of a place to run into someone.
So we will be putting on the miles this week, update next Thursday.
Thanks again for the thoughts, prayers and encouragement.
Roxane & Scott
Take care and talk to you when you get back. Love, cousin Kris
Wednesday, September 21, 2005
Back Home!!
Off to the U tomorrow for shot #5...rounding the corner for the home stretch!!
Roxane & Scott
Thursday, September 22, 2005
Week 5 treatment results
Our RN today, Mary thought it looked suspicious, and she was correct...Scott is being treated for shingles. It is just the beginning of the breakout so we are hoping that it will be mild, he was given a prescription for 10days of meds that should take care it we hope. Shingles can be very painful; we are hoping that doesn't happen, we have a med if it does though.Scott is very contagious (if you have not had chicken poxs, are expecting, are a newborn or have a weak immune system)...so he will have to be very careful not to spread the disease.
Looks like this week maybe a challenging one...but just one more shot, and Phase III will be completed!!
Have a good weekend everyone!!
Roxie & Scott
Thursday, September 29, 2005
Baby Hedrington....it's a............
BOY!!!!
Jen and Ben went for their ultra sound appointment yesterday, and everything looks just fine. If you want to see pictures of our soon to be little William - go to hedrington.com and click on photos - then click on ultrasound photos. William's expected due date is mid/late February.
We can hardly wait :-)
Roxane & Scott
Last chemo appt. today - I will update later.
Thursday, September 29, 2005
Treatment Plan completed!!!
Scott's shingles have reached their peak (I think) soon they will heal and fade away. This past week has been one of the tough ones for Scott, but again he conquered it. We are all so proud of him, he did not really complain (ok sometimes) but I believe few could have tolerated so much.
Of course, we know we owe a lot to our doctors and nurses, researchers, clinical and staff members, and hospitals. We are also thankful for good insurance benefits, the RR has covered all the bills thus far with only co-pays paid by us!! Thanks also to my employer for all the time off I was allowed thorough all this, and to the employees that "covered" for me, especially Bernie!
Scott goes back in late October for a re-check CT scan, in the mean time he hopes to recover quickly from this last chemo treatment. Let's hope his energy and weight go on the upswing quickly. Give him a call/email if you have a chance, he enjoys hearing from everyone.
In November he has a ticket to Lambeau waiting for him, let's hope the Pack can recover before then too!!
And....have we mentioned that we are expecting a grandson ?? Make sure you check out those pictures :-)
This is getting long isn't it? Again and again...thanks!! We could NOT have done this without all the support and prayers and love from family, friends, friends of friends, neighbors, co-workers, and those that we don't even know.
All our love and appreciation...
Roxane & Scott
Ben &Jen - Claire & Kyle
Toby, Lily & Scruffy too!! :-)
Hope that you feel real good soon.
Yes, it has been an amazing journey for both of you! Scott, guess your "vacation" from work will be over once you have all of your strength back--but then, work will seem like a vacation after all that you have been through!
Enjoy!
I hope that you are enjoying the same kind of Fall weather that we are down her in Crystal Lake. It has been gorgeous!
Congrats to all of you on your little William! You will be awesome grandparents!
Lots of Love,
Bernie W.
Friday, October 7, 2005
"Out" week 1
Not doing too much this weekend, we plan to take a short drive and see some colorful leaves.
Take Care All.
Roxane & Scott
Thought of you when I heard about the Packers on Sun.--Go Pack--huh!?
I hope that you got to see some nice Fall colors, not much down here, but I don't think there will be, because we had such a hot, dry summer.
Looks like we won't get up to Chippewa until Christmas--sure would like to see you if you will be in town around then too!
Wow--can't believe that Christmas is just around the corner--man--such a hectic time of year!
Take care of eachother-
Love,
Bernie W.
HAVENT BEEN KEEPING AN EYE ON THE BLOG VERY MUCH LATELY AND HAVE MISSED QUITE A LOT , HOPE THAT YOU ARE FEELING BETTER EVERY DAY , AND CONGRATS, ON THE LITTLE ONE THE PHTOS WERE GREAT I COPIED THEM FOR GREAT GRAND MA.. SHE WAS QUITE THRILLED AND THEN COULD NOT FIND THEM, WELL TAKE CARE LOVE YOU ALL
SUZIE
We've never met though we do have a connection - my Mom was diagnosed with Pancreatic Cancer earlier this year. She also has the same oncologist at the U of M. Mom's battle continues. It's been a very difficult year for each of our families and especially, for Scott and my courageous, dear sweet Mom. I just wanted you both to know that I'm keeping you in my prayers. I can tell Scott is a good person and is very well-liked. I have to say that my Mom is...well...simply perfect. Good people like Scott & Mom do not deserve this. I have so much admiration for you Scott! Keep up with that fighting attitude! Mind over body - ok? Please take care.
Very sincerely,
A MN Viking's Fan :)
Friday, October 14, 2005
Two weeks out...
As the days pass by we are expecting even better days ahead.
Roxane
My sister just called me about the Chi Hi bus accident!
Gosh--it will be such a sad week in Chippewa!
My niece was on a different bus, so we are all very grateful for that. But my heart breaks for all of the kids and families involved. I am sure that most people in Chippewa will know someone who's life has been deeply affected by this tragedy.
Chippewa Falls and Chi Hi are very special places to me--and you guys too, I am sure!
Take good care-
Love,
Bernie W.
JUST A SHORT NOTETO SAY HI AND GLAD TO HEAR THAT YOUR STOMACH IS EXPERIENCING REAL FOOD HOPE THAT YOU CAN KEEP UP THE GOOD WORK .
AS BERNIE SAID THIS WEEKEND WAS QUITE FULL WITH THE ACCIDENT AND ALL MIKE SCHOCH HAS HAD HIS HANDS FULL AND A VERY SAD SCHOOL . WELL TAKE CARE AND MISS YOU ALL HOPE TO SEE YOU SOON LOVE TO ALL SISTER SUE.
Friday, October 21, 2005
Third week "out" - Test day the 25th
We are enjoying a very nice Fall season here in Western WI, the color is holding and the weather has been warm, I guess we could expect a change this weekend though.
Next Tuesday is re-check CT scan day, and a visit @ 3pm with Dr. Greeno. As always we are a bit tense with this day looming, but are expecting great results.
You know what Scott will be doing on Sunday @ noon....GO PACK!!!
Thanks for all your words of encouragement and prayers.
Roxane & Scott
So have a good week and we'll check in with you later. Love to all.........cousin Kris
Thinking about you!
Hope that all your tests come back great tomorrow!
Sorry that the Pack lost.
Thrilled that the White Sox are doing so well though--wow pretty exciting down here--even for us non sports fans! I would LOVE to see them win--what a boost that would be for Chicago. And maybe that Cellular Field could sell more tickets and fill more seats next year!
Keep getting stronger, Scott!
Only 2 more months til Christmas--YIKES!
HAPPY HALLOWEEN!
Lots of Love,
Bernie W.
Tuesday, October 25, 2005
ALL CLEAR :-)
Dr. Greeno did notice though that Scott does have some leaking pancreatic fluid that needs to be drained. The Gastro Doc's want to wait two weeks to let the walls firm up and they will go in by EUS surgery and put drains in so this will not happen again. Dates for this surgery will be firmed up tomorrow, right now they are thinking Nov 8th for another CT scan, and EUS on the 9th, with a stay overnight at Fairview following the procedure. This cyst-like sac resting on Scott's stomach has probably been the problem with some of his eating issues, so he will be happy when this is taken care.
Tomorrow he sees Dr. McCann in Hudson for a regular visit, he got a flu shot today, and is a very happy guy tonight!!
Roxane
Saturday, October 29, 2005
No date set yet...
Next weekend is his trip to Green Bay for the game against the Steelers, he is really looking forward to that, could be another tough game for GB this week again, last weeks was a heartbreaker wasn't it...no comments please Viking Fans :-)
We are meeting Ben & Jen today at Babies R Us...getting a little pre-shopping for William done. We are having lunch, Claire may join us too. Sounds like today will be a beautiful day and a nice Fall weekend, we have a little more yard work to do, but are just about ready for winter.
Happy Halloween everyone, hope you only get treats!!
Roxane
I hope shopping for William was great fun.
Keep us posted on all exciting updates!
Lots of Love,
Tara, Jason, & Owen
Wednesday, November 2, 2005
Still no date
I'll post the date when we know it.
Roxane
Too bad that they are not doing so hot right now, from what I hear!
How fun--shopping for your Grandson!
It has been a wonderful Fall around here, but we all know that winter is coming up fast!
I have my sisters weekend in Madison this weekend--can't wait! That is always a good time!
I hope that you can have that surgery soon, so that you can enjoy all of the Holiday foods--YUMMMMM!!
Take good care of eachother
Love,
Bernie W.
Friday, November 4, 2005
Surgery Day is set...
The surgery is a lot later than we thought, but we can only figure that someone(s) out there need the earlier appts more. If Scott does have a problem we know help is only a call away.
Have a good weekend...look for Scott & Steve (section 124 - row 34 - seats 23/24) at Lambeau Sunday!! GO PACK :-)
Roxane
Wednesday, November 9, 2005
Hanging in there...
Dr. Greeno called Scott today to see how he was doing, much as he expected I think. He told Scott to keep it up and hang in there. Waiting longer for the surgery will firm up the walls of the cyst and make for a better surgery outcome.
Thanks for the calls, visits and e-mail Scott has been getting lately, he loves hearing from everyone.
Roxane
Tuesday, November 15, 2005
At the Clinic today...
The weather did cooperated and the drive home was not bad, just wet, it is still trying to snow now. When we know more I will blog again.
Roxane
Yvonne and Ross
Thursday, November 17, 2005
Change in plan...
It has been decided that Scott will have to have a "NJ" tube inserted in his nose, a nutritional supplement is then fed through this. The feeding tube should help to make Scott stronger and greatly lessen the effects of trying to eat and swallow food. We have an appointment at the U-Fairview on Monday @ 9am to get the tube inserted. As far as we know Scott will have a visiting RN helping us with the care and use of the feeding tube, we will know more when that care gets set up.
Not the best news day around here, but we know that we are getting the best care. Scott needs to be stronger, we will get there it's just a bump in the road.
Roxane
Monday, November 21, 2005
Another change...
The new plan is that Scott will be admitted to Fairview tomorrow and he will be fed by IV (TPN) through the port in his chest. He will stay @ Fairview 24-48 hrs. to have the hospital staff make sure that things are working properly. A visiting RN will help us with the continued feeding from home.
Scott has had a rough day today for sure...cheer on the Pack tonight, that should make things a little better :-)
Roxane
Hope that the feeding and eating problems get solved soon.
Bummer about the Packer game last night--I just happened to catch the last 1/2--BUMMER! I was rotting for them, of course!
People are getting pretty excited about the Bears down here now--the Sox excitement hasn't even worn off yet! Would like to see the Bears in thw Super Bowl--but, realistically--?? I have long seen Chicago teams choke up when they are doing really well--but the Sox held out--so who knows!
HAPPY THANKSGIVING!!
Take Care-
Love Bernie W.
Tuesday, November 22, 2005
Slow start...
Roxane
Yvonne and Ross
Wednesday, November 23, 2005
Wednesday update -
We plan to spend a low-key Thanksgiving together at the U, the food is actually good in the cafeteria...I won't miss out on the turkey dinner :-) Claire is taking Scruffy to EC so I can spend time @ the U, they are having dinner with Kyle's family, Ben & Jen are visiting with us after their meal with the Ferber's.
Though this has been a rough year for us, we are very thankful for Scott's continued progress back to health, for the friends and family we have rooting us on, for the medical team that is caring for Scott.
Happy Thanksgiving Everyone!!
Roxane & Scott
Thursday, November 24, 2005
Turkey Day Update :-)
We have a meeting tomorrow @ 10 a.m. regarding at home care. It still looks like Saturday will be the day he is sent home.
Hope your turkey was good!!
More as I know it.
Roxane
Friday, November 25, 2005
Home!!
A home RN visited with us at about 7 and got his feeding all set up. It is a little frightening to do this ourselves, but we just need to get comfortable with the needle part and the pump usage, he will be fed at night while he sleeps, the feeding should be done at about 10:30 tomorrow, let's home all goes well tonight.
Planning a lazy day tomorrow.
Roxane
Sunday, November 27, 2005
Sunday...
Scott and I are working together as a nursing team. We are getting the hang of things and are not as nervous about the setting up of the feedings as we were, day # 3 coming up for us. We plan to call into the clinic tomorrow to see what the next step in the plan will be.
Scruffy and Claire just got home from their trip to Eau Claire, they have been gone since Thanksgiving day, they both had a great time :)
Roxane
Yvonne and Ross
So glad that the feeding thing is getting all set up and making you feel better!
Roxie--I know that you make a great nurse, now you are just adding a new procedure to your existing skills!
I just swa on the news, that Da Bears won again--I don't understand --the Packers and Bears have flip flopped this year!??!
The kids and I have a quite Thanksgiving weekend at home. We sure would have rather been up in Chippewa, but I am glad that we didn't have to do all of that driving in so much traffic. Christmas isn't far away!
Derek just got home from driving Chad and his friend back down to U of I.
Hope that you all have a very good week--keep WARM!
Love,
Bernie W.
Monday, November 28, 2005
Monday - what we can expect...
We do have an appointment with Dr. Greeno on the 19th of December, Scott will have a CT Scan on that day also. We are not expecting to have the EUS surgery until at least January sometime. Scott can expect to feel stronger each day with the TNP, he is not really feeling well yet, but he certainly has improved from last Monday.
Claire is going to learn what we do with the TPN. It will be nice to have the additional helper when Scott needs assistance.
Things are going ok, we hope the TPN treatment continues to run smoothly.
Roxane
Sunday, December 4, 2005
Sunday update
No Packers on TV here in RF today, we are blacked out due to Vikings game at the same time, we will be listening on the radio, who knows....maybe a win??? Scott said a win would just help the Vikes...so what do you do???
Remember....Packers GOOD/Vikings BAD...We won't go by team records this year :-)
Next Sunday is our 29th wedding anniversary...where have all the years went??
Have a good week, get all that holiday shopping done, I'm doing mine via the internet - it's great.
Roxane
Congrats!! It does go by fast, doesn't it.
Did you really get married on my birthday? Why didn't I remember that!! It does kind of ring a bell now, though!
So I was 21 when you got married!??!
Time flies, but we are having fun, right!!
Keep warm!
Scott, keep getting stronger!
Lots of Love,
Bernie W.
Monday, December 5, 2005
Merry Christmas!
Jim McCarthy ... :)
Wednesday, December 7, 2005
Hurray!!!!
Roxane & Scott
I haven't written in ages, but have been keeping up with your progress and you are always in my prayers. You guys look like a magazine cover! - a handsome couple indeed. Good luck for Monday and stay warm.
Kathy Kuehnast Spraggon
Your holiday picture is beautiful, but Scruffy doesn't look like he likes his hat! Judy
Great picture!
I am so happy to hear that your procedure will be moved up to Monday!
Speedy Recovery!!
Love,
Bernie W.
Hi Scott and Roxane,
We haven't checked in for quite some time but you are in our thoughts continuously. Your holiday picture is great, you both look good in the Christmas Red, even Scruffy ;-) Glad to hear Scott is getting stronger despite the "rocky road".
Good luck for Monday and wishing you a wonderful Holiday.
Doc and Mary D.
Monday, December 12, 2005
Back Home
Our home RN will visit tomorrow for the weekly blood draw and changing of Scott's chest port needle.
He is resting right now, it's been a long day for him.
Thanks for all the thoughts and prayers heading our way!!
Roxane & Scott
Yvonne and Ross
You two are amazing. I don't know if I would have had the stamina or courage that you two have endured this past year. I know Santa will be great to the both of you. God knows you've earned it.
Nathan wants us to come to his new home in Woodville for Christmas, so maybe (if you are up to it), we can stop down and say hi. I'll even sing a Christmas Carol for you. (Now wouldn't that wreck Christmas). Happy Holidays, Best Wishes, all our Love and prayers will be with you as always.
Bob & Susan Rada
Wednesday, December 14, 2005
At the U
Scott's blood work levels require strong antibiotics. He also had a CT tonight, we will get results tomorrow.
More as we know it.
Roxane
Thursday, December 15, 2005
Hospital Update
He is resting well, and we are all more comfortable that he is in the hands of a very capable staff.
The kids and I and Kyle are hanging around here at the U.
More later as we know it, sorry that it has taken me so long to blog today, but we have been waiting for the plan.
Roxane
Love, Emily
Glad that Scott is now in good hands!
Take good care of each other-
Love,
Bernie W.
Yvonne and Ross
Thursday, December 15, 2005
More Details...
1 1/2 hour, with a lot of pushing and poking around. Scott said he feels like the Doctor did a very good job, and worked with him all the time by talking and explaining and making him as comfortable as he could.
They are giving Scott some blood now as I type, I am home for the evening, it sounds like it will be a busy room for the nurses tonight between Scott's treatment and his roomates.
We should hear some more tomorrow, regarding the adjustment they are making to Scott's TPN feeding, he needs some more calories. We are hoping for better numbers regarding his blood counts, and a general better feeling.
Keep the good wishes heading Scott's way!!
Roxane
Friday, December 16, 2005
Friday
Our NP, Tanya was been in today, but she is still waiting for some answers from tests yet.
Roxane
Friday, December 16, 2005
Friday night...
We are scheduled to go back for a follow-up appointment with Dr. Greeno and our NP, Tanya on Monday. We expect to get some news regarding blood tests and cultures they have done. Thursday will be a follow-up CT scan, we are hoping to see healing taking place at the abcess spots (2) they see on his liver, they believe that these two spots are the reason for the infection, probably nothing from the drain tube being inserted caused the problems of this week, except the pain around this spot on his tummy.
An RN from our home nursing group will be here when we get home to train us on caring for the drain and instruct us on giving the antibotics by IV, the TPN has also been increased to help Scott perhaps gain weight & strength, he is still not able to eat any food or take more than a sip of water with his pills.
We think we will have our work cut out for us the next week or so. Let's hope to ring in the New Year with improved health for Scott!!! It will be nice to have him home and comfortable.
Roxane
Sunday, December 18, 2005
Things going fine here...
The first night went well. Scott's antibiotic is added to his IV @ 6a/12p/6p/12a - the full dose is in an infusion ball, we remove it one hour later, let's hope this drug will knock out the infection, he still runs a low grade fever at times, we are hoping by Thursday that the scans will show much improvement.
His strength seems to have picked up a bit, he is talking more, even a couple jokes. He still has pain and is on meds for that, the drugs seem to control it well.
All is going well, I am happy to have him home, no going out in the cold and driving up to the U, we are just tucked in warm and cozy at home.
Roxane
Monday, December 19, 2005
Slow and Steady...
We go for a CT sometime this week, when I checked today, they said it was cancelled?? We will be called tomorrow in the a.m. to reschedule. The surgeon will decide when the tube can be removed, and will check the positioning and drainage again. Dr. Greeno expects the antibiotics to take 10-14 days of treatment.
All fluids removed tested negative for cancer, Dr. Greeno said they were looking around for signs of recurrence and they see none!!!
So we are happy with the reports, just wishing Scott would feel better soon, but I guess it will be a while yet. We are scheduled to be back at the clinic January 3rd.
Thanks for reading our blog and sending all your thoughts and prayers our way, it has been a rough week or two for sure, we were very reassured today...slow and steady wins the race :-)
Roxane
Take care.
Jim McCarthy... :)
All my love,
Tara
Julie Martagon - a friend and coworker of Claire's.
Tuesday, December 20, 2005
Merry Christmas from Ben, Jen and Family!
Glad to hear that Scott is home again and things are improving!
Another tough stretch for you guys!
I hope that Scott feels good and strong enough to really enjoy the Holidays. Guess that he wil have to wait for next year to enjoy all of the cookies!
Thanks for keeping us posted!
Take good care-
Love,
Bernie W.
Thursday, December 22, 2005
Whew...what a day...
He was already not feeling well, another restless night of aches and pains, and not finding that comfortable position. A phone call to the clinic sent us up for the CT a little earlier, unfortunately there were a few emergencies in front of us, we could wait a bit since Scott did not have additional pain or draining from the site. Soon we were in the CT room, the doctor spoke with us right after the procedure, he said the drain would not be put back in, the pseudo cyst had mostly drained already, which was good, the bad news is that there is another area of fluid that is probably causing some pain too, the spot they would need to go in at is between two ribs, the Dr. thought Scott would be in more pain doing the procedure. His suggestion is that we wait 2 weeks and rescan, unless there is a high fever, then we come right back, and something is done immediately.
I called Dr. Greeno's office to let them know what the result of the CT and recommendation was and they wanted us to come over for a visit. Dr. Greeno called Dr. Sielaff and they decided that next week Scott will have a gastric emptying study done (Monday), due to some swelling/fluid in the stomach/duodenum area. Another CT will be done on Wednesday, Scott has a followup appointment with Tanya, NP. Once they get all the info together another plan will be developed. We were happy to be home about 4:30.
We plan to spend Christmas Eve at home this year; Claire will make our family visits in CF on Saturday and head back home on Christmas Day to have dinner with us and Ben & Jen, (Kyle is keeping EC safe this holiday weekend) We will have fun watching the dogs and just hanging out at home enjoying the day.
It warmed up here today, in the high 30's, it must be because we have the Florida Krause's visiting in CF for a long weekend!!
Take Care Everyone...enjoy your families, have safe traveling, and eat too much good food!!
Merry Christmas - Roxane & Scott
Monday, December 26, 2005
The Hedrington Family - 2005
Monday, December 26, 2005
Back to Fairview Today
Right now he has been admitted to the hospital and just finished a CT scan. My mom is waiting for him in his new room Claire, Jen and I are on the way there as well.
My Mom says he is weak but stable, we will keep everyone up to date as we can. I'm sure under the hospital care they can get this figured out and the weight loss and stomach problems turned around.
-Ben
WELL I HAD A CALL FROM TERRY ABOUT THIS NEXT PIT FALL AND AS YOU CAN TELL I AM A LITTLE SCARED FOR ALL OF YOU AND HOPE THAT ALL IS GOING WELL , I AM NOT QUITE SURE HOW TO SAY THIS BUT I AM PRAYING THAT ALL IS GOING WELL AND THAT YOU WILL BE HOME REAL SOON I AM TO FAR AWAY AND HAVE TO WORK TO BE ABLE TO COME AND SEE YOU BUT KNOW THIS YOU ARE AND ALWAYS HAVE BEEN IN MY PRAYERS AND IN MY THOUGHTS EVERY DAY AND IN MY HEART ALL THE DAYS OF MY LIFE I LOVE YOU VERY MUCH AND KNOW THAT YOU WILL BE FINE AND THAT THE DOCTORS ARE DOING ALL THAT THEY CAN . I LOVE YOU GOD BLESS AND KEEP YOU WELL LOVE YOUR SISTER
Tuesday, December 27, 2005
Update from Fairview
More as I know it.
Roxane
You guys were missed greatly on Christmas Eve. I will send some pictures by email. I hope you had a nice quiet, nice at home.
Love,
Tara
Cuzn Jim Ryder here. Shorty's daughter Cuzn Krisie told me of your situation by email today. The picture of you looks like you are fighting "light weight". You should be able to move faster fighting light weight. I will never forget the time I saw you with a hammer putting in rail road spikes in Chippewa Falls. I was working at the Water Department at the time. Good thing you don't have to put in any rail road spikes today. Enough of the BS. Gods will be done. You are loved my many wonderful people. You are in the care of skilled Doctors. You have the best a man could ask for. You are blessed.
Cuzn, Jim Ryder
Tuesday, December 27, 2005
Tuesday afternoon...
Today has been a day of close monitoring for Scott, they also added another central line IV "pic line" in his arm to aid in giving antibiotics.
If you would like to send Scott a e-card the hospital has a web site, they deliver the ecard to the patients daily if received before 2 pm - next day if later.
web address - http://www.fairview.university.org click on "Send a Patient An E-mail"
If you are wondering about Scruff, he is spending a few days in Eau Claire with Kyle.
Thanks for all the thoughts and prayers heading our way.
Roxane & Scott
Ben & Jen & Claire
Wednesday, December 28, 2005
Wednesday - a day of improvements
We are planning to spend the next several days here at the U-Fairview, and are happy with the improvements we see so far.
More news as we know it.
Roxane, Ben, Jen & Claire
Thursday, December 29, 2005
Thursday - each day a little better...
Scott is still showing high numbers on sugar levels, so something new will probably be added to his meds or to the TPN. Dr. Greeno visited today, the infection is under control, the drugs seem to be doing there job so far, adjustments are still being made. As far as his cancer status, no sign of reoccurence, the doctors are going on the fact that this an infection from the pseudo cysts or the liver absesses.
Scott is more alert, but resting right now. We are SO thankful for all the excellent care we are receiving.
Roxane
suzie and pat
We just got home from Chippewa, we had a great stay up there with my sister Becky. We spent a lot of time with my family--they all send their love and best wishes to both of you and your family!
I am so glad to read that Scott is feeling better and stronger today.
It sure was nice not having such frigid weather to deal with over Christmas! Bet you appreciated it too!
I enjoy getting photos!
Love,
Bernie W.
We just got home from Chippewa, we had a great stay up there with my sister Becky. We spent a lot of time with my family--they all send their love and best wishes to both of you and your family!
I am so glad to read that Scott is feeling better and stronger today.
It sure was nice not having such frigid weather to deal with over Christmas! Bet you appreciated it too!
I enjoy getting photos!
Love,
Bernie W.
Thursday, December 29, 2005
What we expect tomorrow...besides snow
Sounds like a busy day for Scott, he took another lap tonight, but still is very tired and really needs his rest time, his hemoglobin is still low, so a couple units of blood could be given before we go home also. Ruth, Scott's NP said..."maybe you will be out of here tomorrow"!! I am not ready for that, we will see what tomorrow brings besides the 3-5 inches of snow, perhaps we will be home on Saturday or Sunday??? I will keep you posted.
Thanks for all your emails, cards and encouraging words, Kyle brought Scruffy home tonight since it looks like things will back to a normal pace soon, if all goes as expected.
Roxane
WELL GOOD LUCK AND HAPPY NEW YEAR TO ALL LOVE AND KISSES SUZIE AND PAT. XOXOXOXOXOX
Friday, December 30, 2005
Getting ready to set him free...
They moved the drain to another spot to get more of the fluid, and will probably move it again next week, he will also have a gastric checkup to see if they can see why he is having the swallowing/stomach trouble. We attended a training class for the insulin usage, we are not sure if this will be permanent or just until Scott is done with the TPN treatment, regardless his sugar is too high at times so we learned how to check and give shots, a little scarey, but I'm sure we will get use to it, especially if this will help with healing.
Though he is still very weak, he is getting around slowly, he missed his nap today, so he was very, very tired when we left tonight about 6, he called me about 9 and said he had slept the whole time.
I will head to the hospital about 10 tomorrow and hopefully we will be out of there by 2 with all our new routine and new instructions.
Everyone enjoy your New Year's celebrations, we will enjoy being at home together!!
Roxane
Saturday, December 31, 2005
Home...
Happy New Year to All!!
Roxane & Scott
Just wanted to wish you a Happy New Year!!! Year 2005 was a pretty tough year but we are sure year 2006 will be much better. Scott, continue to improve everyday, you've a pretty good nurse taking care of you.
Love you, Mom and Dad
Jon, Shannon, and Quinn
Bloomington, Illinois
Sunday, January 1, 2006
New Year's Day 2006
It's always a good day when the Packers Win...so Scott is having a good day watching the games between short naps, and a lot of popsicles, Scruffy loves them too!! I put two TV's in the bedroom so he can catch all the action.
Roxane
Happy new year. I hope that 2006 is a better year and that you enjoy family and friends. Erin & Mark
I am glad that you had a good New Years Day ,with a Packer win making it even better!
YUMMM popsicles--my favorite are banana and root beer, do they still make them?
Have a great week!
I hope that you have many more nights filled with good sleep!
Love,
Bernie W.
Wednesday, January 4, 2006
Back at U of M - Fairview...
Scott has a lot of things going on right now, please send all your healing thoughts his way.
We appreciate all of you...as always
Roxane, Ben, Jen & Claire
Your courage and stamina are impressive and inspirational. Scott, you have been on my "Hail Mary List" for the duration. Always know that only the best thoughts and prayers are for you and your wonderful family. Keeping watch.
Kathy Kuehnast Spraggon
Thursday, January 5, 2006
A bit of good news...
Right now Scott is at CT to have a biopsy of those two spots on his liver, there has been some improvement with one and the other has not gotten larger, if possible they want to also test this area.
Scott's overall condition is a bit improved from yesterday, they are adjusting his insulin, and TPN nutrition is also making adjustments due to his sugar levels.
More news as I know it.
Roxane
Friday, January 6, 2006
Friday a.m. update
Scruffy wanted to thank all the nice people that are stopping by from time to time to take him on potty breaks, walks and feed him. Thanks, Linda R, Linda L, Bernie V and Mary O!!!
I will update with any news as I know it.
Roxane
Roxane
Sounds like you will have a better day today!
You are being so strong and brave through all of this!
You are in my thoughts and prayers every day!
Wish that I was closer, so that I could help out in some way! Know that there is someone in Crystal Lake, IL who loves you guys and sends good wishes each day!
Always,
Bernie W.
Hope things start really improving for you soon. You are always in our thoughts and prayers - John makes sure incase Mike or I forget. Our PC is down at home so I have been checking at work and printing the blog to bring home to Mike to read. Roxi, thanks for keeping us all updated!! Hope to see you all real soon!
Mike, Susan, and John
Saturday, January 7, 2006
Saturday...
Scott does feel stronger though, he is walking the unit a few laps each day. The change in his insulin dosage seems to be working better also.
Thanks for your thoughts and prayers.
Roxane & Scott
p.s. Today is Scruffy's B-day!!! He's 4...he will be celebrating by taking a trip over to Eau Claire with Claire...there are two things he especially loves...rides and popsicles - he will get both today!
I am glad that you are getting up and around again.
Hope that you are able to sleep well through the night, though, I know that that is not easy in a hospital!
Good luck with the stretching--ouch!
We are seeing sunshine outside for the first time in a couple of weeks, I am sure!! Hope that you are too!
No snow left down here in Crystal Lake, IL--too bad, because snow and sunshine is a beautiful combination!
Lots of love,
Bernie W.
Monday, January 9, 2006
Procedure change
As for the liver biopsy results-we don't have any. If we don't hear a result by 3pm our NP will call pathology and have them give her the result over the phone, and she will let us know.
That is all for now. Dad is resting, and waiting for his next procedure. He is "on-call".
More as I know it.
**UPDATE. Dad is back in his room. The procedure this afternoon was not for the stint being placed, instead it was a CT scan to see what they needed to do, where it needed to be placed, and whatnot. So, just a looksie. Hopefully more news tomorrow. No biopsy results yet either. Hurry up and wait, I guess. More later!
Claire
Tuesday, January 10, 2006
Update from Fairview
We are hoping all three of these things can be accomplished.
Of course, this is not the news we wanted to hear. There is no known cure for pancreatic cancer in the liver, but there are options of chemotherapy and pain control. Cancer is not fair, but we are going to fight this one day at a time.
Thank you for your continued thoughts and prayers.
The Hedrington's
We are all very sad to here the news about Scott. We will keep you in our prayers.
Dan, Lee, John, Andy and Mark
All of our love and prayers continue to be with you. And you are right...........cancer is not fair.
All our Love
Bob & Susan Rada
I am thinking about you all today. You all have amazing strength and courage. Emily W.
Our prayers are with you all. Stay strong and together and keep hope alive. We love you buddy.
Kathy Kuehnast Spraggon
Wednesday, January 11, 2006
Back in RF
We got here about 2:00pm. Scott is resting right now, and we are waiting for the home care to drop off our medical supplies.
We have an appt on Friday to get bloodwork and another blood transfusion done at Masonic. Hopefully in the next week we will hear about the EUS procedure. We will also see Dr. Greeno on January 23rd.
Thanks for all the great messages and phone calls. Keep them coming!
We should be ready for some visitors, so give us a call if that is your plan.
Also, send some good thoughts to Jen! She has been having a lot of contractions and is trying to "hold" William for one more week. We aren't sure that will happen though. :) We are very excited!
Take care everyone,
The Hedrington's
Yvonne and Ross
Yvonne and Ross
I haven't checked the blog for a couple of days, looks like you have been very busy and it has been very tough!
It is always nice to be back home and it will be great to be able to have people visit again. Wish that I could pop in!
I hope that little William can stay put, until he gets a little bigger and stronger! What excitement he will bring to your family--just when you need it most too!!
Have a good weekend. Scott, I hope that you can get some good naps and nightime sleep at home!
Take care of each other--
Love,
Bernie W.
As always, you are in our prayers and thoughts. We were saden to hear the news from Judy. We do hope that some positive progress will come your way.
All our Love,
Mike, Susan, and John
I'm thinking of you both often. Keep your chin up and believe in miracles!!
Love,
Michele Huppert
Friday, January 13, 2006
Friday appt. @ Masonic Day Hospital
We also had a visit from Dr. Greeno; he answered several questions that we had. He feels there is more treatment help he can give us to relieve some of the symptoms of the reoccurrence of the pancreatic cancer, but no cure. We have accepted that, and know that we will receive the best care available. We will meet again on January 23rd, to reassess Scott's condition and go forward with a plan.
Scott's fevers have not come back, the meds seems to be working, we are hoping the infection will be gone, and the esophageal stricture can be opened. Scott is very tired and sleepy, but usually pain free, so that is a blessing for all of us.
Thank you for all the thoughts and prayers.
Roxane & Scott
Sunday, January 15, 2006
Weekend update
Today Ben was here to get a few home projects done for me and Scott. Claire spent the weekend at home and Kyle came to watch some football with Scott. Jen is resting as per Dr. orders but it seems that William will still make that early appearance...if not he sure is letting them know that he is on the way, more contractions tonight!!
Thanks for all your thoughts & prayers.
Roxane
So glad that you had a good, restful weekend.
So, were you cheering for the DA BEARS yesterday??? Probably not--being that you are a loyal Packer Backer! Well, I am not a big football fan, but I did watch the game yesterday--and was very disappointed for DA BEARS--like everyone else down here!!
Have a Great week!!
Love you Guys,
Bernie W.
Monday, January 16, 2006
William Scott Hedrington has arrived!
http://hedrington.com/will/
-Ben
Tuesday, January 17, 2006
At Fairview ICU
We both have seen the pictures of our new grandchild, he is perfect isn't he....Little William Scott.
Please keep us all in your thoughts and prayers, as you have for so long.
Roxane
Congratulations on your new grandson. He is so beautiful and such a blessing for your family. I the procedure today can help you Scott.
What a great blessing to have Will arrive healthy and what a cuite little guy. We were sure that he would be born while we were in hawaii and that really had Joan upset that she wouldn't be here. We hope to get over to see the two of you either before we leave or after we return.
Ron & Joan
Yvonne and Ross
Haven't sent a message in quite some time but wanted you to know we think of you often and you are also in our prayers. Keep your chins up, as we can see you are doing.
CONGRATS, Grandma and Grandpa. It is the most wonderful thing to have someone call you "Grandma and Grandpa" We are loving it.
All our Love,
Doc and Mary
Tuesday, January 17, 2006
Tuesday Test result...
I got to hold William tonight, Ben took me over to Fairview-Southdale to see Jen and Will, and yes, he is perfect, even "more" cute than the pictures show. Jen will get to go home tomorrow, Will will stay a few more days, he is doing very well, but with his early birthday, they want to keep a eye on him for a few days.
Roxane
Wednesday, January 18, 2006
Wednesday...progress
We do not have a report back yet from Dr. Greeno regarding the results, but we did learn that the bleeding has stopped. Scott hemoglobin has increased, a small increase, but going the right direction...up!! They also took two more biopsy samples. Scott was very tired after the procedure so we headed for RF about 7pm.
Roxane
Thursday, January 19, 2006
Thursday Update
More as we know it.
Thanks!
Yvonne and Ross
GRANDPARENTS!! Awesome--Enjoy--Congrats!!
Scott, keep on chugging--bet you can't wait to hold that little guy!!
Great pictures, thank you Ben! Love the one with William, Jen and Grandma!
That little Will is one lucky little guy--to be born into your wonderful family!!
Lots of Love,
Bernie W.
Friday, January 20, 2006
Friday test results...
Claire & I visited Will today - his is still very cute and wiggley, and also makes sweet little baby noises. Not sure when William Scott will go home, but he makes progress each day, he's a good eater and is over 6 lbs. now!!
More later.
Roxane
Uncle Roger
Sunday, January 22, 2006
Weekend @ Fairview...
We did have a test in nuclear medicine, they remove a small amount of blood from Scott, make it radioactive, inject it back in him and follow the bloods path for about a hour, this was a difficult test for Scott to complete due to the fact that he had to stay still while lying on his back for one hour, but he did succeed. We had to go down again today for a few more minutes of pictures because the doctors wanted another look at a certain spot. We are hoping to hear results tomorrow. Scott will not get to leave the hospital until they are sure that the gastric troubles are over, no more bleeding or bowel problems.
He is resting better today; he has had a couple rough nights. He visited with several visitors this weekend, and watched a little football today between naps. His sprits are good, but he sure wants to leave the hospital. The staff and RN's all treat Scott so well up there; they always welcome him back, try to make him comfortable and feel at home while he is away.
Roxane
GLAD TO HEAR THAT YOU HAD A QUIET WEEK END. HOPETHAT ALL THE TESTS THAT THEY ARE DOING COME BACK WITH GOOD RESULTS AND THAT YOU WILL BE ABLE TO GO HOME REAL SOON, THEY SEEM TO BE FINDING A LOT . BUT NOW THAT THEY ARE YOU CAN BE WELL ASSURED THAT THEY WILL TAKE CARE OF IT BEFORE YOU GO HOME. LOVE TO ALL SUZIE AND MOM XOXOXOXO LOTS OF HUGS AND KISSES.
Tuesday, January 24, 2006
Tuesday evening -
William will get to go home tomorrow, he has been doing great, Ben & Jen can hardly wait...I wonder what Toby & Lily will think of Will???
Roxane
Scott, it sounds like you have just wonderful Drs. and nurses! The hospital will never be like home, but I am glad that they try to make it as nice as possible!
Glad that Will is home now--it is always so exciting bringing a little baby home!
I hope that Scott can spend some time with him soon!
Keep up your good spirits--I know that all of the hospital staff loves both of you--they must love your courage, strength, sense of humor and smiles!!
Take care and I hope that you both get plenty of rest!
Love,
Bernie W.
Yvonne and Ross
Thursday, January 26, 2006
Thursday Update
Thanks for all the thoughts and prayers. Keep them coming, and we will keep fighting.
The Hedrington's
Yvonne and Ross
This has got to be such a tough time for all of you.
KNOW that you are in my thoughts and prayers.
Lots and lots of Love,
Bernie W.
All our love,
Tara, Jason, & Owen
The Simmers
Congratulations on your precious grandson, William Scott, he is such a cutie! :)
Please know that you are in our prayers every night.
Love to you all,
John, Jill, Sean, Jack, and Alex
Saturday, January 28, 2006
Saturday early update
We were excited to have William come for his first visit with Grandpa last night!!! I cannot really explain what a joy that was...
Roxane
Saturday, January 28, 2006
Grandpa and Will's First Meeting!
See more pictures at Will's Blog
-Ben
My prayers are with you and your family. May God be with you and your family during these difficult days.
Mike Hofkes
Yvonne and Ross
Dan & Toni Megan, Elmer & Joanne Bjork
Scott, it is so great to see that you finally got to meet and hold your grandson!
I hope that you can go home real soon, so that you can get some quality rest and be close to all who love you!
I know that you will be able to visit with Will more often at home!
I loved the pictures of all of you on the blogs!
This is a very special time for all of you! I am thankful that you are willing and able to share it with all of us too!
Stay strong!
Lots of Love,
Bernie W.
GRANDPA, I HAVE ONE QUESTION IS THAT A FLAVORED PASSAFIER????
AND BUY THE LOOK ON YOUR FACE YOU ARE IN SEVENTH HEAVEN.
YOU LOOK WONDERFUL . BOTH OF YOU .
LOVE TO ALL SUZIE OXOXOXO
From your cousins
Andy & Stephanie Wagner
What a wonderful day that must have been.
Can't wait to hear of the day you get to go home so that you can have more of those visits.
Lots of Love,
Tara
Monday, January 30, 2006
Home in RF
Feel free to email or call as these first days home will be time for us to be together and adjust to our new routine.
scott@hedrington.com
roxane@hedrington.com
The Hedrington's
Meredith
The Simmers
Love, Mike, Susan, and John
NOW THAT IS A REAL SWEET WORD AND I KNOW THAT YOU ALL ARE GLAD TO BE THERE . ENJOY YOUR TIME WITH THE FAMILY AND ESPECIALLY THAT NEW LITTLE MEMBER , HE IS THE SWEETEST LITTLE MAN I HAVE EVER SEEN AND HIS GRANDPA IS THE HAPPIEST I HAVE SEEN HIM IN QUITE A WHILE.
LOVE AND KISSES TO ALL
SUZIE
Erin
DAB
It was so nice to see the pictures of the two of you with little Will. He's so cute! Scott, I glad you got to come home to be with your family.
Joel Larsen
Friday, February 3, 2006
We have settled into a care routine, we have a visiting RN, her name is Heather, she has helped us out a lot with Scott's comfort, she is very experienced with pancreatic cancer patients, so we are thankful for her. Claire has been able to work flexible hours and from home; which is a BIG help for me, she is able to do all the shopping, help out with daily housework chores, and help with Scott's care.
I have been printing and reading your emails, cards and notes with Scott. Thank you also for flowers, balloons, and gifts that he has received in the last few weeks.
We expect a visit from Ben, Jen and William this weekend, perhaps even Toby and Lily will come along!!
We appreciate all your thoughts and prayers...
Monday, February 6, 2006
On Sunday Kyle came over to watch the Super Bowl with us, Claire made us a lot of snacks, and the game was even a good one...wrong team won, but it seems that has happened a lot this year.
Tomorrow we expect a visit from Heather, RN. and a few visitors.
It is cold here in WI, but we do have a lot of sunshine and that is nice to look at from the inside!!
Roxane
Wednesday, February 8, 2006
Roxane
Sunday, February 12, 2006
We appreciate your prayers and words of comfort at this time.
The Hedrington's
Monday, February 13, 2006
Monday morning...
We know we are in your thoughts and prayers, we appreciate all the support and kindnesses shown to us.
The Hedrington's
Tuesday, February 14, 2006
Arrangements
Bakken-Young funeral home here in River Falls.
http://www.bakken-young.com/
Memorial Visitation
Wednesday, February 15th, 5-8:00pm
Memorial Service
Thursday, February 16th, 11:00am (lunch following service)
Thank you for all your support, love, and prayers.
The Hedrington's
Monday, February 20, 2006
Thank you for all your kind words, hugs, and memories you shared with all of us over these past weeks. Scott loved life and touched so many...
The Hedrington's
Tuesday, February 21, 2006
Gifts in Memory of Scott
We plan to make donations directly to those that provided Scott’s care.
Fairview-University Medical Center, Hudson Hospital, Heartland Home Care.
These listed below have great web sites.
University of Minnesota Cancer Center
http://www.cancer.umn.edu/page/aboutus/funding/funding2.html#TRIBUTE
Virginia Piper Cancer Center-Abbott Northwestern Hospital
http://www.abbottnorthwestern.com/ahs/VPCI.nsf/page/philanthropy
PanCan – An organization that directly benefits pancreatic cancer research and patients.
http://www.pancan.org/Donate/index.html
Thanks to all of you, we can provide financial support in Scott’s name to benefit research and the families of others with cancer.
The Hedrington’s
Sunday, February 26, 2006
Our last posting...
We are doing as well as can be expected with Scott's loss...day to day. Many of you have offered your thoughts and prayers in notes, cards, emails, phone calls and visits as ways to help us with dealing and coping with Scott’s death. We all thank you for those kind gestures.
What Ben plans to do is reverse the order the postings for other's out on the web searching for information on pancreatic cancer treatment so they may come across his father's story from the beginning.
Please keep in touch with us; you have all helped us in so many ways. Our email addresses will remain the same.
A poem was sent to me, which has a lot of meaning for all of us. We would like to make this poem our last entry in Scott's blog.
The Hedrington's
Listen, gentle people, and hear my truest needs....
I hear you stumbling for words. Relax.
There are no words .....I hear you
remembering a funny story about my
loved one and looking embarrassed
because you are laughing. Share with
me. Let me laugh. It gives me
something to hold on to in the middle of
the night when I feel only pain ....Be
your happy self... and let me be me. On
days when I can laugh, I will. On days
when I can speak of my loved one, I need
you to share my memories....You don't
have to give me answers, for I will learn
to live without them. You don't have to
pretend my loved one never existed,
thinking I will forget if you do. Let me
speak his name, and you speak it, too.
He is always there, that one I love so
deeply, always a part of who I am. If
you take that from me, I will be less than
who I am.
Jacqueline L. Rogers